I ended up seeing the neurologist, like my sleep doctor suggested. She wanted me to see him to verify that it is okay to continue going on to a higher dose of focalin, since I did have something that looked suspiciously like a TIA.
Well, the verdict is out. I can't go up on the focalin yet, because I'm going in for an MRA tomorrow to make sure everything's okay in the veins in my brain (an MRA is a non-invasive angiogram).
I also need to go for TEE, to make sure the swelling in my leg doesn't somehow end up in my brain. They don't think there's a blood clot in my leg, at least, the ultrasound didn't show one, but they want to make sure all the ducks are in a row.
Meanwhile I'm trucking along on 20 mg of focalin. I have a two hours or three in the morning I feel wakeful, and then it's back to needing to lie down every hour to hour and half for twenty minutes.
It'd be nice to have a life.
If I try not to lie down, I get very dopey. Walking into things, automatic behaviors, the works.
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About sleepychick
I'm a 34 year old woman with multiple sleep disorders (sigh). Sleeping's been a lifelong sort of love hate thing for me. I had my first polysomnography in 2001, and I was told I was "fine." Turns out, from my history and the muscle tone that the PSG returned, I showed signs of REM Behavior Disorder.
Fast forward three years, where my neurologist, on hearing my reports of ungodly fatigue (more like someone turned up the gravity) and daily headaches, declared I needed a sleep study.
That time they found moderate obstructive apnea.
Did my CPAP titration, wear it dutifully. But I was still so tired. I mean, tired like I was smote from on high. So two weeks ago, I had a re-titration.
They discovered (this time) I needed my CPAP turned up and I have Periodic Limb Movement in Sleep Disorder. I also have an extremely abnormal sleep architecture.
What I wouldn't give to sleep through the night!