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Trying to adjust

Last post 11-20-2008, 12:37 PM by Dowler-Lucas. 13 replies.
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  •  11-06-2008, 11:08 AM 32668

    Trying to adjust

    I was injured in car accident 9 months ago and am in a seat. I call it a seat instead of chair due to the one and only support group I went to one participant kept asking everyone "How long have you been in the chair." I am sure everyone thinks their case is difficult and I am no different. My injury is T9-12 so I do have feeling and movement from the waist up for which I am trying to be greatful. I live in a small community with few resources. I have a difficult time getting transport to get to my out patient therapy. I have not yet been taught how to transfer into a car, and do not own a vehicle with a lift. I am not a small woman, but have lost over 70 pounds since the accident due to depression. I am sure being larger has made it more difficult to learn transfer techniques. I have been a registered nurse since 1991 and used to working 2 or 3 jobs all the time since I really loved my job. I am finding myself very depressed, and the longer I go without being able to go places the worse I feel. I just sit in my seat and play online games, and go for ventures outside when the weather allows. I have not been able to travel the 2 hours to my neurosurgeon for follow up appointments since I have been home due to no transportation to get there. I have a fear that I am going to wake up and not be able to move at all. I do believe having xrays taken and hearing the neurosurgeon saying everything is fine would help this. I want to have a life and start to feel a little bit like myself but am not sure how to go about it right now. I am going for counseling, but getting there can be a problem too.  I can see that I have been rambling, but I guess one of the things I would like to find out is that if there is any help getting a adapted vehicle so I can get to where I am suppose to go, and maybe have a life.

    Thank you for listening, and any suggestions.

  •  11-06-2008, 8:58 PM 32801 in reply to 32668

    Re: Trying to adjust

    Welcome to the forum. I have just started visiting here and like it very much.

    I am sorry that you are having a difficult time. It is commendable that you have lost weight, I am sorry it is because of depression though. I am wondering where you did your rehab that they did not show you how to transfer into a car? How do you get anywhere? I have been unable to find much funding for a vehicle aside from having your own fundraiser. Vocational rehab will pay for modifications to a vehicle you purchase if you are returning to work. It would help if I knew what state you were in.

    What did you drive before? You may not have to have a lift if you learn to transfer and break down your "seat". Many many paras do not have vans with lifts, but simply hand controls. Sometimes this is better because you have no worry about equipment failure and parking is usually easier. being able to drive is a huge step to gettting back to life.


    I just came back from yesterday.
  •  11-08-2008, 1:00 PM 33008 in reply to 32668

    Car transfers

    Being able to drive, and get out was the biggest step to "getting my life back" for me.  At your level, you will probably be able to drive a regular car, with hand controls.  Do you already own a car?  If so, you may only need to get hand controls for it ($1500) or so.  Expensive, but not as much as considering getting a whole adapted vehicle.  The best cars to drive  are ones that allow for a level transfer, and are big enough to allow you to get the chair in.  (Mid size and up.  Mini vans and SUVs are harder.)  There is no public transportation for wheelchairs where I live either, so until I was driving, I depended on friends or family to drive me around. 

    The first step may be to learn how to get into the passenger seat, so that you can go out with friends.  Do you use a slide board to transfer into bed?  Transferring into the car is the same concept, just in a cramped space.  It isn;t much harder once you figure it out.  Until you get good at it, stick to cars that allow a fairly level transfer (ie ... not big SUVs or mini vans).  A good point here, it is hard to fall …. Between the door, the frame and the wheelchair, there isn’t far to go!   In rehab they taught me just enough to get into the car with help.  After I was home, I went to outpatient PT for a while, and learned how to load the chair. 

    I use a slide board to transfer.  I position myself in the open door, scoot forward in my chair, place the board under my thigh, and on the car seat, I put one foot on the ground and slide across the board into the car seat.  Then I pull my feet in.  It works better with leather seats, with cloth ones, my butt tends to want to stay where it first hits the seat.  When I was first hurt, my mom made a nylon seat cover, that made it easier to slide into position once I was in. You will have to experiment as to where to put your hands, each car is different.  When I was first injured, we would open the window first, so someone could reach me.

    In the beginning, you will be in someone else’s car. So they can load the chair for you.  Once you are finally driving yourself, you will learn to put the chair in the car with you.

     I was looking for a video online to show you.  I wasn’t able to find one using a board, but both of these are pretty good.  These guys are able to pop right in, but if you imagine that they used a slide board, the rest of the video is pretty accurate, as to how I get in, and then put my chair in.  (Don’t worry about the chair loading for now, just know that you will be able to learn how to do it, it is easier than it looks.)

    I use permanent hand controls, one guy in the video demonstrate portable ones.  You can search around for more videos as well, but WARNING ….. if you aren’t familiar with online vids, there are some weird ones out there.  If the title is “Sexy girl with floppy  paralyzed legs transfers into the car” you might want to skip it.

     http://www.youtube.com/watch?v=cQraE9xrArw

     http://www.youtube.com/watch?v=8xAG_G5DKAA

     As far as learning to drive with hand controls.  What state do you live in?  The regs about hand controls varies from state to state.  In some you can just go and have them installed, and figure it out.  In many, you can’t purchase them until you are tested by the dmv.  In Connecticut, where I live, the dmv will also teach you how to use them on their cars.  There was no charge for this, which was great.  The con was it took almost a year from the first phone call, until I was driving my own car.  Easter Seals sometimes gets involved, or commercial classes.

    OK. this really rambles, it will make more sense when you try it.  Feel free to ask me some more questions if what I said is too confusing.

    So, step 1:  get a friend to help you figure out how to get into the passenger seat of the car, and go for a ride!

    Getting out is important, I know for me, the more I just stay home, the worse I feel.

     



    T 7-8 since 2005
  •  11-08-2008, 2:39 PM 33017 in reply to 33008

    Re: Car transfers

    Just wanted to add I got my hand controls for 800 that included installation. No one should charge you over 1,000. Sjean who charged you 1500?? Maybe it's the area you are in but that's really steep.
    I just came back from yesterday.
  •  11-08-2008, 8:47 PM 33051 in reply to 33017

    Re: Car transfers

    After you posted I went and looked it up.  (The $1500 was off the top of my head).  It was just under $1200.  May be the area ..... cost of living in CT is pretty high, but that's a big difference.  Maybe I need to move!  Huh? [:^)] (It was installed as well.)  This was Nov 2007.  I checked a couple of places as well.   By the way these were Suregrips, and Rideaway installed them. 

    T 7-8 since 2005
  •  11-11-2008, 12:24 PM 33374 in reply to 32668

    Re: Trying to adjust

    As I read your message, my greatest concern about you is the isolation. Of course, I am a psychologist may see things through a narrow lens. But to me the issue is more important than what you are calling depression. I have no doubt that you feel depressed and perhaps even despair on occasion. But the fact that you are so anxious to get involved in life after just nine months speaks volumes about your mental health.

    So, I am thrilled you found us as a support group. But I wish you had more. If you don't mind, I would like to hear about friends and family who would be willing to mobilize to help you get around. The more you expand your support network, the more likely you are to find the resources you need. For example, someone in your network may know of a physical therapist who could come to your house and teach you transfers.

    On the other hand, many of us (and I do mean us) after losing our independence have great difficulty reaching out to people and say "please help me". It's some misguided notion many of us have been asking for help makes us weak. I learned a lesson about that the first time I went shopping by myself. I was overwhelmed with anxiety, shame and self-consciousness when I went to shop a new pair of shoes (don't ask why shoes, you will have to ask my analyst!). So I could barely see what was on the shelves and when a salesperson asked if I wanted help, of course I said no. I bought a pair of shoes (about two sizes bigger than I need to be on the safe side) and brought them home. When I looked at them carefully I hated them and never wore them! Next time I went shopping, I had the self-confidence to say "please help me". So now I've got some pretty cool shows in my closet!

    Please expand your caring network however you can.

    Dan

    Daniel Gottlieb PhD

    www.DrDanGottlieb.com


    Daniel Gottlieb Ph.D.
    www.DrDanGottlieb.com
  •  11-12-2008, 12:51 PM 33741 in reply to 32668

    Re: Trying to adjust

    I am so sorry that you, too, are in a "seat." I think one of your greatest challenges is going to be the fact that you live in what sounds like such an isolated area, but there may be help you are unaware of. The city that I live in has medical taxi's that will take you to doctor appointments with a fair amount of advance notice. Mostly it is the elderly who use it, but it is also open to anyone with a disability. I think with some practice you will be able to get yourself in and out of a regular car. No lift or ramp van needed, just a car with hand controls. If you have a car to practice on go for it. Use the sliding board and get yourself in and out on the passenger side first because you won't have the steering wheel in your way. When you get good enough at that switch to the driver's side. It takes a lot of work, but it is SO worth it. You are depressed, which I know you are aware of, but I just want to reassure you that is normal, especially for an injury so recent. You will get past it, or most of it, eventually, and having a counsellor to talk to might be of enormous advantage. Once you can get a car with hand controls installed you will have your freedom back. Until then check elder services to see if they also allow disabled folks to ride their vans, or check to see if there is a para transit system your town might be part of. These are basically wheelchair friendly taxi vans that will take you out with some advance notice. My very first car had 96,000 miles on it when I got it. I threw a set of hand controls on it and I was good to go. Wishing you the best of luck. Eileen
  •  11-14-2008, 2:03 PM 34154 in reply to 32668

    Re: Trying to adjust

    You have gotten a lot of good suggestions and support already, but I have some additional resources that you might want to use.

    For used accessibble vehices, which would help with the cost, you can try

    Accessible Vans of America

    www.accessiblevans.com

    and

    Disabled Dealer

    www.disableddealer.com

    Also, the Travis Roy Foundation may be able to help with the cost f modifications, such as hand controls.

    I hope this helps!

     

    Have a great weekend!

    Donna

  •  11-15-2008, 3:48 PM 34228 in reply to 33374

    Re: Trying to adjust

    I want to thank everyone that replied to my blog. It was nice to hear that it does get better, and life can be good again. To answer some of the questions, I live in Ohio and was at Dodd Hall at OSU for a total of 8 weeks. I went there right after my surgery and then went to an extended care facility until my body brace came off in three months. I then went back to rehab since I was able to bend and move more without the brace. There were many issues, UTI which I still am having problems with. My bowel program never did work and it has been trial and error but am in a good place right now. My one and only vehicle was totaled in the accident so I will have to find a way to get a new one. I have 2 sons in their 20's and the younger one lives with me and helps me. I am lucky to have such wonderful children. I do have a few new questions if you don't mind. I have been paralyzed from the waist down since the accident but was able to move my right foot for about a week period after my surgery then the movement stopped. I now have started being able to tighten my lower abdominal muscles which is new for me. I also can feel some stinging when having a UTI. I am hoping these things are on the good list. Another thing is that I am always soooo cold. My feet and behind feel like I am sitting on a block of ice, which is very uncomfortable. Does anyone have any suggestions on how to make this feeling stop or be not quite so cold? I am now transferring out of my seat to the bed and back with my son there as back up. So hopefully getting into a vehicle and actually going somewhere is coming soon!Smile [:)] Thanks again for reading my ramblings and any suggestions or comments.
  •  11-15-2008, 5:55 PM 34237 in reply to 34228

    Re: Trying to adjust

    Welcome to the forums Dowler-Lucas


    "Don't be silly, Toto. Scarecrows don't talk. "
  •  11-15-2008, 8:38 PM 34247 in reply to 34228

    Re: Trying to adjust

    I think the bits of sensation and movement are a great sign! 

    As far as the cold goes ..... I am with you there.  No real ideas othere that staying bundled up.  Sometimes I think the feel cold is related to the lack of feeling.  I am not warm, so I must be cold.  My lower back, kind of from bra line to hips, is the worst for me. 

    Do either of your son's have cars?  I was thinking you could practice getting into their cars, or a friends, and at least you could go out. 

    Glad to hear the transferring in/out of bed is getting better! 

    T 7-8 since 2005
  •  11-19-2008, 3:29 PM 34696 in reply to 34228

    Re: Trying to adjust

    Since you are in Ohio I highly highly recommend you go to SCI Step near Cincinnati. They will help you so much.  www.sci-step.com

    They have a free week that is no gimmick. I have never heard one bad thing from them. You stay in an apartment for free. All you need is a way to get to therapy and to buy your food. Find a way to get in the car and go there. They will teach you transfers, anything you can imagine. I have been there twice. I am not affiliated with them aside from being a patient.


    I just came back from yesterday.
  •  11-19-2008, 6:24 PM 34719 in reply to 34696

    Re: Trying to adjust

    I even think they will arange some sort of transportation as well.  I know at one time I read that the only things you had to pay for was food and transportation.  I have been looking into going as well.  The availability of the free week is usually several months out, but sometimes there is a last minute cancellation, and if you are flexible, you can grab it.

    T 7-8 since 2005
  •  11-20-2008, 12:37 PM 34801 in reply to 34696

    Re: Trying to adjust

    Thank you so much for the email address.  I have requested an application. It is nice to hear they have such a positive attitude about chance of improvement!  Where I was before it wasn't like that at all. It was more like,"Work with what you have." This at least gives you some hope.Big Smile [:D]
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