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The Power of Words

Last post 11-04-2008, 9:47 AM by haiku_. 3 replies.
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  •  10-20-2008, 6:57 PM 29898

    The Power of Words

    I didn't know where to post this, so I am putting it here and maybe Dr. Gottlieb and others can share their thoughts.

     


    I am coming up on 3 years post injury and find that I am still very sensitive to some things that people say to me. I don't know if this will pass with more time or if it is just my personality that I am seem to be affected so much. I was at a family reunion this weekend. I am not really comfortable being in large groups since my injury, so I concede that my anxiety might have been heightened and therefore my level of sensitivity as well. Anyways a member of my extended family repeatedly used the word "cripple." He didn't mean it in a malicious way, I realize that. But everytime he said it, I found it wounding me. Examples:


    "My neighbour, she's a cripple just like you and needs a wheelchair"


    "Since your crippled I guess you get the good parking spots"


    I didn't say anything to let him know it was bothering me. I don't know...should I have?" I try not to let it bother me but sometimes such comments can really devastate me and increase my feelings of somehow being cut off from everybody else.


    I also got a lot of well meaning  things like "you are such an inspiration" and "I don't know how you do it, I couldn't live like that. You are a stronger person than me." And "You are so brave." Again I didn't say anything to let people know it bothered me so maybe I shouldn't be complaining I guess. I basically smiled and let it go even though some of the comments left me feeling quite upset.And while it seems silly to let things like this bother me, I have to admit they do. I am guessing some of the comments people make come honestly from the fact that they are uncomfortable with my disability and so conversation becomes awkward because they don't know what to say to me. I have a friend who is very skilled at moving past that awkwardness very quickly and can set whoever he is talking with at ease and doesn't let it bother him. I seem unable to do that.


    What makes me wonder if I am just being too sensitive is that on another spinal cord injury site I read and post on, many members use words like "crip" and "gimp" as part of their regular vocabulary. And it's not that I object to it or find it overly offensive because I do understand why some people with disabilities use such words. But I personally findI find them very hurtful. Occasionally somebody on those forums will object to the use of such words and they are almost always instaneously shouted down as being too sensitive. Others argue that the words themselves only have as much power as a person allows them to. And in some ways I agree with that. One can make a word mean anything and can let it to be as harmful to them as they allow, even if that wasn't the intention of the person who initially used the word. But I have always felt that if I even have the slightest doubt that somebody reading or hearing my words might find one of them hurtful, I won't use that word. And that is a good thing but it really doesn't help me when I am the one finding a given word affecting me in a negative way.


    Any thoughts? Am I being way too sensitive in general and just need to toughen up? Or do words such as "cripple"  and platitudes like "you are such an inspiration" bother you others as much as they bother me? 



    "Don't be silly, Toto. Scarecrows don't talk. "
  •  10-20-2008, 10:25 PM 29921 in reply to 29898

    Re: The Power of Words

    The actual words don't bother me as much as the tone sometimes.  That slightly condescenting, a little extra loud and slow voice?  But I really do hate being referred to as an inspiration.  And I get the "It is so good to see you oowwwwwttt dear".  Way too much.  (It is enough to make me want to stay in!)

    But various dis related words don't tend to bother me, unless they are being used in a hurtful way.  In that case, I do think it makes what is being said worse.  I will occasionally use gimp in referring to myself, but I try to avoid it speaking to others, as I am never sure if it is appropriate for the situation.  I did surprise my daughter recently.  My in laws really need a ramp, as they are elderly, and my f-i-l broke his hip last year.  We finally convinced them that they needed to put it in for ME. (And I must admit, it is much nicer that the portable one, that I needed help with.)  Well I told Meg that we were successful, but it took "playing the Gimp Daughter card to get them to agree."  She was stunned.  I know it is far more common for me to be referred to as "crippled" by older people.  I am thinking that maybe the kids today are at least absorbing some of the respect and consiideration for others lessons they are getting in school these days!

    If it is a casual aquaintence, I will just grit my teeth and ignore it.  Smile and say something vague, move the topic on.  If it were someone I dealt with more often, I think I would eventually say something, but that has really not come up. 

    You know what else I find hard to deal with?  Meeting up with someone for the 1st time since my injury.  And all the sympathy, and "Oh, it is so terrible, how could this happen, etc etc" that I realize everyone is going to have to work through at some level.  But damn it!  Do it on you own time.  I am past that now (or at least I hope so) and really don;t want to discuss it how terrible it is!  A quick "I was so sorry to hear about your accident." is fine, but then let's move on thankyou.



    T 7-8 since 2005
  •  10-21-2008, 12:21 PM 30018 in reply to 29898

    Re: The Power of Words

    Frequently when I give lectures around disability issues, I note how words have changed even in my lifetime. We have gone from cripple to invalid to disabled to "special needs ". And then I love to tell the audience how that means my needs or special, but theirs.... not so much! So we have struggled with words since people have realized that those who are different are still human.
    For years after my accident words hurt me. But then again, looks hurt me and so did attitudes. Sometimes I would just be hurt and withdrawn, but sometimes I could be assertive and ask people to use different language. But that was rare. Mostly I was either hurt or passive aggressive. Like the time I went into a diner with my eight-year-old daughter. The hostess asked her where I would like to sit! So I turned to Ally and said: "tell her I would like to sit over there near the window." Ally, knowing what I was up to sit to the hostess: "he would like to sit over there by the window"!

    What really hurts about words is what they mean to us. I frequently tell people the most painful aspect of any trauma is the alienation that accompanies it. Somehow, we feel extremely alone and different in this world and people saying things like that to us (either positive or negative) reinforces our feelings of isolation. Shortly after my accident, lots of people came into my hospital room and said lots of stupid things as all of you I'm sure experienced. But one evening my cousin came in and looked down at me with tears in his eyes and said "I have no idea what to say to you". We both cried together as I finally felt as though someone saw me and not my disability.

    All these years later I don't much care what people call me. If they are condescending or anxious, I know that they are suffering more than I am at that moment.

    And one other thought. Throughout my childhood people told me I was too sensitive because I cared deeply about other people and animals and because I was easily hurt. In hindsight, I was not too sensitive. I was just sensitive. And that is something I want for everyone I care about, because the opposite can be pretty ugly.

     

    Dan Gottlieb
    Daniel Gottlieb Ph.D.
    www.DrDanGottlieb.com
  •  11-04-2008, 9:47 AM 32210 in reply to 30018

    Re: The Power of Words

    Thank you  Dr. Gottlieb for your reply. It gave me a lot to think about. This is something I continue to struggle with greatly.

     

    Dan Gottlieb:


    For years after my accident words hurt me. But then again, looks hurt me and so did attitudes. Sometimes I would just be hurt and withdrawn, but sometimes I could be assertive and ask people to use different language. But that was rare. Mostly I was either hurt or passive aggressive. Like the time I went into a diner with my eight-year-old daughter. The hostess asked her where I would like to sit! So I turned to Ally and said: "tell her I would like to sit over there near the window." Ally, knowing what I was up to sit to the hostess: "he would like to sit over there by the window"!

    This is me exactly. Going out in public is very difficult for me (although I do force myself) because I am hyper sensitive to words and looks and attitudes. Probably far more sensitive than is good for me. I can remember somebody once saying to me "oh you are just being paranoid, nobody notices you." And while I conceed I worry too much about it, the reality is I do draw attention where ever I go and most of it is unwanted. There seems to be two sides to it: people either stare or they go out of their way to ignore me. I think perhaps the most difficult situations for me are the ones such as you had with your daughter, when somebody will assume that they need to ask whoever is with me what it is I want or need. There was a time when I used to be passive aggressive about things like that. Or when somebody made comment that perhaps was made without much thought to my feelings. I think though, after a certain time I just started to give up and try to hide my hurt. I couldn't be assertive, I hated being passive aggressive, and I just started thinking "what is the point...people are going to stare and say things or ignore me anyway." A defeatist attitude I suppose. And not one I think is really healthy. But I guess I don't know what else to do. I guess the thing that concerns me is that it seems to be getting harder, not easier, as time goes on.   


    "What really hurts about words is what they mean to us. I frequently tell people the most painful aspect of any trauma is the alienation that accompanies it. Somehow, we feel extremely alone and different in this world and people saying things like that to us (either positive or negative) reinforces our feelings of isolation."


    That really is the heart of the problem. For me it is the feelings of alienation (both real and imagined in my head) that presents one of my biggest barriers to moving forward. It is interesting you would mention that positive comments can also reinforce that feeling of isolation. I never thought of it that way but it is very true for me. Somebody praising me for accomplishing something that I know to them is pretty trivial, such as going out for coffee, does reinforce my feelings that I am different. Even if they don't intend any hurt, it can really increase my feelings of isolation and being different.



    And one other thought. Throughout my childhood people told me I was too sensitive because I cared deeply about other people and animals and because I was easily hurt. In hindsight, I was not too sensitive. I was just sensitive. And that is something I want for everyone I care about, because the opposite can be pretty ugly.


    I agree. I just posted (by coincidence) something in another thread about this. I do often struggle with the notion that some people I care about are not always as sensitive towards others as I wish they would be. At times I wonder if I am projecting unrealistic expectations on them. Maybe I am. And the line "you are too sensitive" is something that I hear a lot from some people in my life.  I have tried to reframe that from feeling criticized to just seeing it that I try to treat people how I myself would want to be treated. Sometimes I am successful. But other times I wonder if maybe some people are right and I just am too sensitive for my own good. But as you say, the opposite can be pretty ugly.


    Thanks again.  


    "Don't be silly, Toto. Scarecrows don't talk. "
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