Reeve Foundation Paralysis Community

Greetings, Time to get out my Cuddle Duds! I'm gettin' ready to rub elbows with the stars!!! I've been lucky enough to get invited to the 2009 Sundance Film Festival in Park City, Utah. From January 20 thru the 26th, I will be hanging out with a class...

I haven’t heard too much from my dad lately…It’s funny what love can do to a person...Monday night dance lessons…“Is it Friday yet?" Wednesdays... It's Friday night Date Nights!!! ...weekends once filled with those lonely cold drives to the boys high...

After a frustrating return to school that involved me withdrawing from a graduate program, wrangling help from a Dean to get admitted into a course at another school, serious lack of confidence issues, classmates who were openly contemptuous of my writing...

We have had a pretty good fall here, having very warm, above average temperatures off and on until the end of November. But winter has now arrived with full force. On Friday we had a snow storm that dumped close to a foot of snow. But that was minor compared...

Cautionary stem cell tourism guidelines came out earlier this month, taking aim at overseas clinics characterized by unsupported expectations, overhyped therapies and uninformed risk. The new guidelines originated from the International Society for Stem...

The recent Society for Neuroscience meeting in Washington, DC, showcased a huge range of work that, in the whole, leaves little doubt that regenerative medicine and functional recovery are moving forward. (A tip of the MadWire hat to Steven Edwards, a...

Thanks be given.There’s plenty to be thankful for. Here’s to the sun, our star, our life-source. I’m thankful it comes up everyday, and I’m grateful it does so much to keep me alive and well. Wouldn’t you know, as I scribe this from Southern California,...

So, with all the troubles going on in the world these days Mitty (the kitty) and I decided to do out part to raise happiness awareness. We held a "Saturday Night Dance Party!"...with two attendees. : ) If you follow this link, you will experience some...

Start with algae, add light, treat paralysis. It’s one of the coolest science stories coming out of the big Society for Neuroscience meeting this week in Washington D.C.Scientist Jerry Silver, who sits on the Reeve Foundation Science Advisory Committee,...

Good Evening. (...or morning...late afternoon, wide-eyed can't sleep 4am?) I had another disability experience this week I thought I'd share. Recently, I had a filling fall out of one of my teeth. Being one of the many dentally uninsured Americans...

Day one of the Barack Obama Administration, a mere ten weeks away, will witness a dramatic shift toward the pro-cures movement in this country. The freshly inaugurated Obama will almost certainly lift restrictions on federally funded embryonic stem cell...

  Once again, my good intentions to keep this blog updated on at least a semi-regular basis have fallen by the wayside. But tonight, needing an outlet after a totally frustrating day, I figured I should revisit my now rather lonely blog. It seems...

Tonight was a difficult night for me. I just returned from visiting a friend who is very sick and in the hospital. My friend Bill (aka my "Fishing Buddy" Bill) has stage four prostate cancer that has metastasized to different parts of his body. There...

If your doctor gave you something for what ails you and it made you better -- even if it was a fake drug, or placebo -- would you mind? In other words, would it be OK if your doctor lied to you if it was in your best interest? A fascinating study came...

Good Morning, Nothing too witty or profound this morning (or perhaps at all SCI related...) BUT F.Y.I. I think I’ve uncovered the childless parent’s equivalent of nose-picking! That is, I do not have a child but I am in a way a parent…to my cat....

The Scientist, a prominent life sciences magazine, reported that the first clinical trial using embryonic stem cells may finally get the green light early in 2009. The stem cells have emerged from the work of Hans Keirstead, a scientist at the Reeve-Irvine...

Good Morning,I am happy to report that I completed the Team Reeve All-Stars elliptithon in 4 hours! (which is exactly the amount of time I allotted for this event... : ).  I feel good today just some lingering soreness in my posterior region and...

Tomorrow, as I've mentioned, I'm running a marathon.  For my "physically challenged" body this will be four hours on an elliptical machine. When I've shared this goal with others...I have gotten two general categories of responses. First, are those...

Life Rolls On, the LA-based charity started by injured surfer Jesse Billauer, held its annual Night by the Ocean dinner gala last Sunday at the Kodak Theater in Hollywood. It was in the same room as the Oscar’s party. It was billed as black tie, which...

I started this blog with good  intentions. I was going to write something here at least 3 times a week. It seemed like a good idea at the time. A great idea even. I like to write and this blog afforded me the chance to write. Ah but even the...

Good Morning, This time next week I will be slathered in Icy Hot! Next Saturday, the 18th, I will be running my Team Reeve Marathon. I will be running for four hours* (hopefully straight) on an elliptical machine in support of SCI research. I've...

..it was the best of times, it was the worst, you knew that was coming. I got my copy of the monthly journal Spinal Cord today. This is the house publication of the International Spinal Cord Society and the primary repository of clinical research in SCI....

It’s distracting in these times of economic vaporization, but we’re hearing a lot more about the war in Iraq these days, not because we really want to think about more than 4000 Americans who died there, or nearly 100,000 civilian deaths. It’s due to...

Good Morning, This past weekend I attended a family wedding. Unfortunately, I was tired and grumpy. I do not think people with mobility impairments should EVER have to wear fancy shoes...my loving but very "fashion friendly" family would argue otherwise...

There was quite a bit of talk about stem cell tourism last week at the World Stem Cell Summit in Madison, Wisc. For good reason: It’s a fascinating confluence of homegrown medical distrust, internationalism and online culture, with a dash of adventure...