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Daily Dose

  • After accident, high-flier is one of a kind

    At 35, Michael Glen isn't letting the fact that he is living with paralysis from a car accident at the age of 21, keep him from soaring through the skies.

    And you can see Glen, also a Reeve Foundation Ambassador, in the skies this weekend at the Quick Chek New Jersey Festival of Ballooning.

    Before taking flight in a typical hot air balloon, the pilot usually climbs into the basket.

    Michael Glen lies down.

    That’s because Glen, 35, is paralyzed below the waist.

    “I can do anything anybody else can do, I just might do it differently,” he said.


    Read more here.

    Janelle

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  • Who do you think is the Best Dad on Wheels?

    We've started getting some really great entries for our 2010 Best Dad on Wheels contest. We love to read the uplifting stories and see the pictures of dads that are truly amazing.

    There so many great dads out there and we want to hear about all of them! (Reeve Foundation Ambassador, Scott Chesney, pictured with his daughter.)

    Click here if you think a dad you know should be crowned the 2010 Best Dad on Wheels.

    Tell us in 200 words why the father you nominate should win. Let us know all the ways he is dedicated, earnest, and a one-of-a-kind type of dad! And don't forget to attach a picture and video if you have it.

    The nomination round is open until September 3 so get those entries in!

    Good luck!

    Janelle

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  • Have you signed up to be part of a wheelchair world record, yet?

    We are approaching the 20th anniversary of the Americans with Disabilities Act. Don't let this day come and go. Be a part of history. Honor what the ADA has done in the past 20 years, and what it will do in the next 20 years to come.

    Join the Reeve Foundation in LA on July 25 to commemorate the anniversary.

    Click here to sign up now!

    Be there as the Reeve Foundation celebrates by breaking a Guinness World Record by having the the most wheelchairs in a moving line.

    Happy anniversary to the ADA!

    Janelle

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  • ADA at 20

    We are just 10 days away from the 20th anniversary of the Americans with Disabilities Act. So what does 20 years of the ADA mean?

    “Let the shameful wall of exclusion finally come tumbling down.” Thus spoke President George H. W. Bush at the White House signing of the Americans with Disabilities Act, July 26, 1990.

    For people with disabilities, that wall -- symbolically and literally -- has come down. It hasn’t entirely disappeared but the ADA, reversing the centuries long history of “out of sight, out of mind” segregation of disabled people, has made a real difference in people’s lives.

    It means so much more, too.

    Learn more about the ADA at 20.

    (Pictured: Standing from left to right are Rev. Harold Wilkie of Claremont, California and Sandra Parrino of the National Council on Disability. Seated from left to right are Evan Kemp, Chairman of the Equal Opportunity Commission, President George Bush, and Justin Dart of the Presidential Commission on Employment of People with Disabilities)

    PS: Don't forget about commemorating this historic event with the Reeve Foundation!

    On July 25, the Reeve Foundation will be at Dodger Stadium to set a Guinness World Record by having the most wheelchairs in a moving line.

    Be part of history!

    Janelle

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  • Siblings take on Team Reeve

    Many of our Team Reeve participants are inspired by a friend or family member who is living with a spinal cord injury. This brother and sister pair out of New York are no exception.

    For the better part of the last seven months, nearly every day has started the same way for Kevin and Lindsay Morgan.

    At 4 a.m., the Morgans would will themselves out of their respective beds. Then came the foray through the front door, leading to another encounter with a pitch-black morning in upstate New York.

    Runs stretching past 10 miles were part of this pre-dawn routine. Bike rides approaching 60 miles were included. So, too, were hours in a pool. And let us concede that the bone-chilling temperatures that accompany winter in Rochester, N.Y. did not always make things easy.

    Nonetheless, the Morgans, brother and sister, persevered through this training because of one man -- their uncle, Robert Morgan. (Pictured with Kevin and Lindsay).

    Read the rest of the story here.

    Want to learn more about this amazing brother and sister team? Click here.

    Janelle

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  • What's life on wheels like?

    We've written before about a program out of Canada, Rick Hansen Wheels in Motion, that challenges able-bodied individuals to understand day-to-day tasks of a wheelchair user.

    Recently, the organization held an awareness and obstacle relay to show the challenges wheelchair users face on an every day basis.

    Five teams competed in Tuesday's relay that had people race through an obstacle course while in a wheelchair. But that's not all they had to do. While wearing oven mittens, competitors had to do everyday things including plugging in a cellphone, bagging groceries and putting paper into an envelope.

    Read the rest.

    Janelle

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  • Utah Chapter Keeps on Rollin'

    The Utah Chapter of the Reeve Foundation is hosting an event this Saturday, July 17 at Brighton Ski Resort. The Keep on Rollin' charity car and bike show is expecting to showcase over 300 classic cars and motorcycles.

    The event is being organized by the Utah Chapter of the Christopher & Dana Reeve Foundation. Steering Committee member Ryan Stevenson is president of this year's event. Ryan suffered a spinal cord injury in a snowboarding accident three years ago that left him paralyzed. Ryan's love of classic cars and the support of his family and friends were instrumental in his recovery. Ryan believes that it is his responsibility to do what he can to help find a cure for paralysis and help others with spinal cord injuries. Keep on Rollin' is Ryan's way of giving back to the community and the Christopher and Dana Reeve Foundation, who have given him so much support.

    Click here to read the rest!

    Learn more about Keep On Rollin' here.

    Janelle

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  • Christopher Reeve on the ADA

    I was recently finishing Christopher Reeve's book, Still Me. At the end, some of his speeches are listed, including one from the Democratic National Convention on August 26, 1996.

    He said these powerful words about the Americans with Disabilities Act:

    “First of all our nation can not tolerate discrimination of any kind. That’s why the Americans with Disabilities Act is so important and must be honored everywhere. It is a civil rights law that is tearing down barriers both in architecture and in attitude.

    Its purpose ts to give the disabled access not only to buildings but to every opportunity in society. I strongly believe our nation must give its full support to the caregivers who are helping people with disabilities live independent lives.”


    Christopher Reeve's words of the ADA could not ring truer as the 20th anniversary is upon us coming up on July 26.

    In honor of Christopher Reeve and the family of individuals living with disabilities in America, please join us on July 25 as the Foundation commemorates this historic day and aims to create a Guinness Book of World Records for the most wheelchairs in a moving line at Dodger Stadium in LA.

    Click here for more information on the Reeve Foundation event.

    Be not only part of a record, but a part of "tearing down barriers" and join us during the event.

    Want more information on the ADA? Click here.

    (Photo: Standing from left to right are Rev. Harold Wilkie of Claremont, California and Sandra Parrino of the National Council on Disability. Seated from left to right are Evan Kemp, Chairman of the Equal Opportunity Commission, President George Bush, and Justin Dart of the Presidential Commission on Employment of People with Disabilities)

    Janelle

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  • Life Rolls On surfs in Virginia

    Twenty-seven surfers came out to enjoy sunny skies and great waves on Saturday, June 26th in Virginia Beach, VA. Among them was 37 year-old Brendon Cunnginham, a quadriplegic from Bristow, VA, who sustained a spinal cord injury four years ago. “This event was the highlight of my summer,” said Cunningham. “I never thought I would enjoy surfing again, especially with my limited movement. This gave my kids a chance to see that their dad can still do the unthinkable.”

    They Will Surf Again would not have been possible without the support of our phenomenal volunteers. More than 110 individuals supported our surfers at the beach, including some volunteers who made the trip from neighboring states. It was a pleasure to work with local volunteer event coordinators Maury Cooke, Randy Pesich, Jeremy Phelps and Raul Pernites. This terrific quartet even organized a fundraiser the night before the event, raising $2,000 for the TWSA program in Virginia Beach! If you’re in the area, look for adaptive surfers Pernites and Phelps on August 25-29 as they participate in the Life Rolls On Expression Session at the East Coast Surfing Championships.

    Our next They Will Surf Again event will take place in Wrightsville Beach, NC on Saturday, August 7th. If you’re in the area or can make the trip, we’d love to see you. To register, visit: http://www.liferollson.org/twsasignup

    People always tell me how lucky they feel to have LRO come to visit their city, but truly the pleasure is ours. If you’d like to know more about They Will Surf Again or our other adaptive action sports programs, please check out our website at www.LifeRollsOn.org. I’d also be happy to answer any questions. Just give me a call at (310) 807-5488 or shoot me an email at Sarah@LifeRollsOn.org.

    Sarah Donaldson
    Program Manager - They Will Surf Again
    Life Rolls On Foundation

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  • Video news: Clothes for the seated, skate boarding, and more

    This edition of our video newsletter is about summer safety. The Foundation's Paralysis Population survey revealed that of the over 1.2 million people living with spinal cord injuries, 16% were injured through a sporting or recreational accident.

    Our information specialists do not look forward to the summer season. Sadly, our telephone (800-539-7309 Mon.-Fri., 9 am to 6 pm ET) rings way too often with someone looking for our assistance with a new injury. With that in mind, we have put together tips for you and for you to share with your kids.

    Watch it now!

    Also in this issue:

    Clothes for the seated
    Meet Sophie Morgan. A breathtakingly beautiful British young woman who is an artist, model, and outspoken advocate for people living with disabilities. She visited the Foundation recently with Canadian Designer Izzy Camilleri. They are revolutionizing clothing for what they call their "seated clientele."

    Taking flight
    Able Flight, one of the Foundation's Quality of Life grant recipients, was created by pilots who believe that learning to fly can change your life, and they wanted to share that experience with people living with disabilities.

    Taking your chair into a skate park
    Our Life Rolls On subsidiary runs a program called They Will Skate Again -- teaching people living with paralysis that they can accomplish more than they ever thought.

    Join Team Reeve
    Check out the promo we've put together about our athletic fundraising effort -- Team Reeve. You can take any sport you're passionate about from running to bike riding to swimming and turn it into a way to help others. We'll show you how.

    Enjoy the summer. Be safe! Watch the video.

    Rob

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  • Setting a wheelchair record in Los Angeles

    Less than two weeks to go! Sign up now. If you are not in the LA area, let someone out that way know what we are up to.

    If you haven't heard, here is what we are up to:

    The Christopher & Dana Reeve Foundation is commemorating the 20th anniversary of the passage of the Americans with Disabilities Act (ADA) by setting the Guinness World Record for the most wheelchairs in a moving line!

    Help us set a Guinness World Record!
    Anyone in a wheelchair is welcome to participate in breaking the record.

    The event is free and open to the public.

    We hope you, your friends and family can join the fun and festivities!

    All participants must register for the event
    .

    Where: Dodger Stadium
    1000 Elysian Park Ave
    Los Angeles, CA 90012

    Use Gate A entrance on Sunset and Elysian Park Avenue

    When: Sunday, July 25th

    Arrival: 8:30 a.m.
    Program: 9:00 a.m to 11:00 a.m.
    Participant photo: 9:00 a.m.
    World record begins at 9:30 a.m.
    Event promptly ends at 10:45 a.m.

    Entertainment, surprise celebrity guests and giveaways throughout the morning!

    Sign up now. More to come. Stay tuned.

    Rob

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  • Moses Chao named president-elect of the Society for Neuroscience

    Moses V. Chao, PhD (pictured), former chairman of the Reeve Foundation's Science Advisory Council (SAC), has been named president-elect of the Society for Neuroscience (SfN); his term will begin at the Society's annual meeting next November in San Diego.

    Former SAC chairman Fred H. Gage, PhD also served as SfN president (2001-02) as did Lorne M. Mendell, PhD (1997-98), a Principal Investigator in the Foundation's International Research Consortium and Albert J. Aguayo, MD (1987-88), a Consortium Advisory Panel member.

    Founded in 1969, the Society has more than 40,000 member scientists and physicians whose focus is to explore the brain and spinal cord in order to develop better treatments and cures for central nervous system diseases and disorders. The Society also publishes The Journal of Neuroscience, "the largest weekly scholarly journal dedicated to neuroscience discovery."

    Read more about Chao's election.

    Rob

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  • Uncle inspires brother and sister team

    As a Communications Intern at the Christopher & Dana Reeve Foundation, I got the honor of writing about Team Reeve All Star members Lindsay and Kevin Morgan, who will participate in the Musselman Half-Iron Triathlon in Geneva, New York this weekend, for my first assignment.

    After listening to their heartfelt accounts of how their paralyzed uncle, Robert Morgan, has positively impacted their lives, I was left in awe. Their immense efforts and optimistic attitude have inspired me to appreciate and celebrate life.

    I wrote this story, Uncle Inspires Brother and Sister Team, from the heart and I hope that their story motivates you as much as it has motivated me.

    (Pictured: Lindsey and Kevin Morgan with their uncle Robert)

    One afternoon, in January 1991, 33-year-old Robert Morgan was working at his parent's seafood business in Rochester, New York. In the midst of a robbery, Robert was shot.

    "I remember my father getting a phone call," recalls Robert's nephew Kevin Morgan, 35, who was 16-years-old at the time. "It was probably the first time I had seen my dad cry."

    "We didn't know if he would live or die," says Kevin's sister Lindsay Morgan, 32. "It was very hard for my dad and my family (living in Pennsylvania at the time), but we got through it."

    Robert Morgan would live, but he would be paralyzed from his waist down.


    Read the rest of their story.

    Padmavathy Sonti
    Communications Intern

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  • Help us set a Guinness world record!

    Sunday, July 25 the Christopher & Dana Reeve Foundation is commemorating the 20th anniversary of the passage of the Americans with Disabilities Act (ADA) by setting the Guinness World Record for the most wheelchairs in a moving line!

    Anyone in a wheelchair is welcome to participate in breaking the record.

    The event is free and open to the public. We hope you, your friends and family can join us in LA!

    All participants must register for the event.

    Dodger Stadium
    1000 Elysian Park Ave.
    Los Angeles, CA 90012

    Arrival: 8:30 a.m.
    Program begins: 9:00 a.m.

    Register now at ChrsitopherReeve.org/ADA!

    Rob

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  • Road show travels on to Boston

    The Reeve Foundation has been all over the country the past few months spreading the word in communities about Reeve Foundation initiatives. The Road Shows, sponsored by 180 Medical, allow the communities to learn about everything from Quality of Life programs we support to progress in spinal cord research.

    Coming up on Thursday, July 15, the Reeve Foundation will be in Boston, Massachusetts.

    The Boston Road Show will include presentations by:
    - President and CEO of the Reeve Foundation, Peter T. Wilderotter
    - Executive Vice President of Research for the Reeve Foundation, Susan Howley
    - Representatives from Quality of Life grant recipient, Piers Point Sailing Club

    Also presenting at the Boston Road Show will be Steve Williams, M.D., Chief and Chairman of the Department of Rehabilitation Medicine at Boston Medical Center, and Director of the Reeve Foundation's NeuroRecovery Network center there.

    Click here for more information and to register now!

    Janelle

    (PS: The next stop for the Road Shows will be in Houston, Texas in September, so mark you calendars now!)

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