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Showing page 1 of 2 (34 total posts)
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This makes me CRAZY. Hubby has a perfectly good, $30,000 power chair that can be chin controlled or sip and puff, and can even have a vent tray put on it, sitting in our garage. The fit of that one just didn't work and it gave him sores no matter what cushion as it didn't have tilt in space. Fast forward, he has a new chair and we
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Too bad you can't attach a photo of the bed to the request. And a photo of your bruise!!
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*giggle*
*laugh*
*snort*
A car jack. I'm sorry, but that's just plain funny!!! That is, when its not me. :) I like puzzles too .... now I know why!
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Trish - we continue to live oddly parallel lives. I haven't been over in a very long time, but in looking around today, this post really hit home with me because I'm dealing with the same issues. I made two very major changes lately, and both have been absolutely amazingly good for me.
1) we hired a PCA. We can afford ...
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I can't imagine how difficult it must be to summon up the courage to date after an SCI .... your whole physical world has turned upside down and it probably feels like the same thing has happened to your social world. But in reality, SCI is in many ways a good filter for the crap .... friends who were true friends stick with you, family who ...
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Oh man, that is just awful .... after a long day of driving the last thing I want to do is go to the store, and being in a chair it has to be even worse. I hope that wherever your travels are taking you, that they are less eventful than the ones so far!
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p.s. when I saw the title of this thread, I was absolutely sure this was going to be a 'public encounters that sucked' thread. LOL ...... (we have the same sick sense of humor I think!)
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Your prayers were answered .... the answer was just ''tough luck''. I'm being sarcastic of course ... but I'm an atheist, so the whole god will (or will not) heal me thing never flies too far with me either way. But it does make me very angry at times - when people tell us they will pray for (name) .... gee, I need to make up a name ...
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We experience alot of bone headed people when we're out and about of course, but its the positive ones that really make an impression on me. The idiots I just mentally file into the 'you are an idiot' pile in my head, and move on - people's reactions rarely bother me anymore. But every now and then there is a neat encounter that happens
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Ummmmmmmmmmmm.
No.
I just can't, it really wouldn't be fair of me because I know how he would react - either he would feel guilty or I'd feel guilty. But its really nice to have people who understand, particularly someone who is injured himself. That really does help.
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I felt so tremendously guilty when I read your post Ronald ... I wish that you had a better situation. But then I looked at the title of the thread again ... SCI steals and robs from all ... ALL of us, however we are affected. Take care.
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As we always say ... we're glad you're here, but not the 'why' you're here. I don't have alot of resources to give you personally, but you may want to check out www.carecure.org which has alot of information on the main page and in the various forums (although beware, it can be a bit of a jungle there on the forums).
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Hazeleyes, the same goes for me. I don't think I communicated it well, but I know that you have good intentions in offering suggestions. But as you can see, solutions are hard to find.
LOL Trish - I soooooooooooo relate!! I have pretty much nixed any appts before 1 pm unless it is a true last resort. It does ...
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Just reading that helped. :)
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You know Dan, that is a good question - what do we want? I have a virtually identical set of issues as Trish, and I think the thing I want most in the world is to be able to VENT without having trite suggestions served up to me.
What I just wrote probably feels offensive to hazeleyes ... and is exactly how I feel when I'm ...
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This is why we need our commune. Sigh.
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oh, ok! THat makes sense.
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I really relate. Until faced with it myself, I had NO idea how socially isolating a wheelchair can be. We can't go to anyone's house. Which means if we want to get together with friends, they have to come here (which means I have to clean like a maniac, which I totally do not have the energy for) or we have to meet up in public ...
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My situation is a little different in that my son was barely 3 years old when I met my husband (who is a C4/5 complete and uses a chin controlled power wheelchair). So he never knew him not in a chair, but still, his chair looks like something out of Star Trek and can be very intimidating even to adults. But what I did was act
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I am really lucky in many ways because my husband is really, really patient and loving. He wouldn't ever forget my birthday or not mention it. He does nice things for me all the time (to the extent possible). He says nice things to me. But as you say, I am soooo not in love with caregiving itself. I do know that if the
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My husband has a Quartet environmental unit: http://tinyurl.com/dlmpk8 He's had it for almost 15 years now. It is still funtional but it is becoming less and less useful over time. It can control any device through an X10, like a fan or light, and that all still works. It can also operate a phone by directly hooking it ...
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I'm a caregiver. Present and accounted for. :)
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When we had hired caregivers, my husband made the person show him the pills before they were put in his mouth. Fortunately, his pills were all very different in size shape and color, so he could tell if they were wrong.
Another thought, although maybe this isn't allowed, is putting his meds into one of those containers that ...
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Hmmmmm. I put in our address and town correctly, and our town shows up on the map. But our pin doesn't show up at our town, it shows up about 30 miles SW of where we actually live. Help?
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Hiya Trish .... and everyone else,
I'm a caregiver too, my husband is a C4/5 quad of more than 20 years. I have an 8 year old and I work full time. I work from home because we have no caregiver for my husband other than me. Insurance does not pay for anything - and as you once said to me in another place, I think ...
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Oh, if only this worked. :( I could talk, admonish, write contracts, shake my finger, and be tough as nails until the end of time and we would still have all the same problems. We have done background checks, personally have checked references, have a written contract, in short: have done everything right. But people are still stupid ...
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You know, we get this alot too. Mostly from older people and other disabled people. In fact, I'm guilty of doing the same thing - I tend to start conversations with older and/or disabled people because I know how isolating it can be when the chair is so intimidating. Adults don't want to make eye contact so much of the time, kids ...
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Shan .... I relate, my husband and I are the same age, within 6 months of each other in fact. And a receptionist ata doctor's office asked him if he'd like his mother to come back with him or not. I nearly died on the spot. I'm very often referred to as his nurse too.
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Yes, on the positive side, when my husband broke his arm recently, there was one tech who took the xrays with him fully clothed (minus his concealed glock of course*) and in his chair. She just gently leaned him forward, put the thing behind his back, I held him in place while wearing a lead apron, she got a portable machine and presto, ...
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Bra in the ear muff position, omg, I nearly spit my tea out on the screen ....! And 'are you sure' .... I love your response sjean. :)
I hate it when they tell me to get him on the table and totally undressed. I always ask if its really necessary because its an ordeal to get him transferred, undressed and in a gown when 95% of ...
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