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  • FL Spinaal Cord Injury Resource Center Closes

    This came as a total surprise. Did any FL residents see this coming? http://www.flspinalcord.us/ Dear FAAST Spinal Cord Injury Resource Center Subscribers: This correspondence is to inform you that the Florida Department of Health, Brain and Spinal Cord Injury Program (BSCIP) contract with the Florida Alliance for Assistive Services and ...
    Posted to Life (Forum) by PRC_Bernadette on July 13, 2010
  • Welcome Everyone

    Our newest member to the Reeve Forum is member # 500.Watch us grow!
    Posted to Life (Forum) by PRC_Bernadette on May 28, 2010
  • Re: thoraic spine cord injury t7/8 - success story post surgery

    Welcome to the Reeve Community!&nbsp; I look forward to hearing more from you as you post and participate.&nbsp; We can all learn so much from each other----thanks for posting.
    Posted to Tell us about yourself (Forum) by PRC_Bernadette on May 25, 2010
  • Re: Hello...

    Hi Alicia:Welcome to the Reeve Community Forums. Glad you found us but wish you didn't need us!&nbsp; I hope that you will share more of your personal experience--successes and challenges with us.I look forward to hearing more from you.
    Posted to Tell us about yourself (Forum) by PRC_Bernadette on May 25, 2010
  • Re: DO NOT READ

    Hi Brandon:You got me to look!&nbsp; Welcome to the Reeve Community.&nbsp; Might I make a few suggestions on how to raise money and other possible walking programs for you?First: NTAF, National Transplant Assistance Fund &amp; Catastrophic Injury Program NTAF provides fundraising support for qualified individuals and acts as your 501 (c)3, making ...
    Posted to Advocacy (Forum) by PRC_Bernadette on May 24, 2010
  • Disabled Athletes Defy an Unaccommodating City

    I thought this article would be food for thought.Disabled Athletes Defy an Unaccommodating CityI found the article below in the NY Times last week.&nbsp; I think it says a lot about accessibility and disability in other countries.&nbsp; To be a top athlete and to be virtually unrecognized because you are an athlete with a disability is totally mind
    Posted to Sports/Recreation/Travel/Hobbies (Forum) by PRC_Bernadette on May 24, 2010
  • Stop by our booth

    Please be sure to stop by Booth # 210 and meet the staff of the Christopher &amp; Dana Reeve Foundation.&nbsp; We will be at the booths each day so stop by and say hello, ask a question or simply to meet some of the folks who post in the Reeve Community.&nbsp; We look forward to meeting you.
    Posted to Sports/Recreation/Travel/Hobbies (Forum) by PRC_Bernadette on May 17, 2010
  • Transitioning from Teen to Adulthood with SCI

    Here is another good piece from the folks at the NW SCI Regional Center in Seattle Washington. In November 2009 in conjunction with Seattle Children's Hospital they produced The SCI Forum Growing into Adulthood with a Spinal Cord Injury.&nbsp; Read more below: The SCI Forum Growing into Adulthood with a Spinal Cord Injury, which took place ...
    Posted to Parents and Families (Forum) by PRC_Bernadette on May 17, 2010
  • Resources for Parents with Disabilities

    More than 17 years ago as I was expecting my first child I was looking everywhere for resources as a parent with a disability.&nbsp; I needed an accessible crib, wasn't sure how I could carry my son and I simply wanted to know what was available for me and my child.Today, the Paralysis Resource Center (PRC) provides information and resources to ...
    Posted to Life (Forum) by PRC_Bernadette on May 17, 2010
  • Re: Results: Top 10 Things that annoy people using wheelchairs

    Looks like the survey opened a can of worms.&nbsp; Lets make this a moment to educate and inform.RickC3/4 was saying that when he can walk, ie. ''good weather, etc. he does walk.&nbsp; In snow etc, he is in the same situation as a wheeler, he can not make it into a building without the spotPoint 2, many folks with SCI do not have normal sized ...
    Posted to Life (Forum) by PRC_Bernadette on May 7, 2010
  • Re: Dr. Dan's thoughts on healing and personal stories

    Wow, Dr. Dan, you really touched my soul today with your thoughts.My signature on all but one of my email accounts is ''Every day I wake up is a good one.''&nbsp; I had a dear and very close friend who had this as his signature.&nbsp; He was injured many years ago in the Australia outback.&nbsp; He was a fighter, the first quad to ever walk out of ...
    Posted to On Healing (Forum) by PRC_Bernadette on May 4, 2010
  • FAMILY CAREGIVERS OF VETERANS NEEDED FOR SURVEY

    FAMILY CAREGIVERS OF VETERANS NEEDED FOR SURVEY The National Alliance for Caregiving is seeking participants for a new study of family caregivers of Veterans. This study is intended to determine how caregivers of Veterans are coping and what community and VA services, resources, and programs would support and assist them with their ...
    Posted to Caregiving (Forum) by PRC_Bernadette on May 3, 2010
  • Re: Traveling with C5 injury

    Hi and welcome to the Reeve Forums. &nbsp;It sounds as if you are describing autonomic dysreflexia (AD). Excellent that he was just cathed but is there a chance his bladder is full again?&nbsp; Some folks use a foley cath or condom cath (if he is able) when they fly, especially depending on the length of the flight.&nbsp; What about bowel? Do you ...
    Posted to Tell us about yourself (Forum) by PRC_Bernadette on May 3, 2010
  • Re: SCI steals and robs from all

    Hi: Now that your son is 18, he is considered a house hold of his own and might qualify for more programs than he did when he was under 18. Depending on your state, there might be some assistance in the SCHIP program or in the Developmental Disabilities program.&nbsp; Many states are making deep cuts so money is tight but I am willing to talk to ...
    Posted to On Healing (Forum) by PRC_Bernadette on April 29, 2010
  • Re: Favorite Gadgets/ AT devices

    Hey Brandon: Always nice to hear what products a user finds helpful. Thanks for sharing your experience. I used to use Via Voice by IBM and liked it a lot. The voice recognition has improved so much over the last 10 years or so. Now that Dragon is being used by the able bodied (AB) they made lots of improvements and the price has dropped ...
    Posted to Assistive Technology (Forum) by PRC_Bernadette on April 29, 2010
  • Re: Favorite Gadgets/ AT devices Stylus Touch Pad

    This review comes from Harold, one of the Information Specialist team members at the Paralysis Resource Center.http://www.wacom.com/index2.php I love it! For me it allows a high degree of quick accuracy and comfort. The options also allow the user to fine tune how you like the sensitivity. They sell a variety of levels of tablets depending ...
    Posted to Assistive Technology (Forum) by PRC_Bernadette on April 28, 2010
  • Resources for Women with Disabilities

    I ran across this website and thought it worth sharing with all the women in the Reeve Community.It is so hard to find information specific to women with disabilities that this is a ''must share''.http://www.bcm.edu/crowd/The Center for Research on Women with Disabilities (CROWD) at Baylor College of Medicine welcomes you to our website and ...
    Posted to Life (Forum) by PRC_Bernadette on April 27, 2010
  • Re: Getting Ready for Boston

    JRM~ Thanks for your update and description of Boston. I lived in Boston for a number of years and can feel your journey through the outskirts into the heart of Boston.Many years ago my eldest son was in MA General on the day of the Boston Marathon.&nbsp; I will never forget the sea of silver as runners walked on the street below warming up after a
    Posted to 26.2 (Forum) by PRC_Bernadette on April 27, 2010
  • Update on Kristina Ripatti Ex-LAPD officer Four years after her injury

    This video from the LA Times features Kristina Ripatti, a former LAPD police officer shot four years ago by a suspect.&nbsp; She participates in the Reeve Foundation program Next-StepFitness in LA and is a neuro-recovery network (NRN) client (see video).Kristina talks about how she is adapting to her life as a wheelchair ...
    Posted to Life (Forum) by PRC_Bernadette on April 26, 2010
  • Re: Loneliness

    Hi Brandon:Thanks for your post on loneliness. Ever hear the saying that you can be ''alone'' in the middle of a crowd?&nbsp; Loneliness isn't always about being around people but more about ''feeling connected''.You have suffered lots of losses in such a short period of time, your marriage, your injury and then your grandmother.&nbsp; All these ...
    Posted to On Healing (Forum) by PRC_Bernadette on April 26, 2010
  • Re: How To Videos

    CK~ You are such a slacker!&nbsp; Thanks for sharing your efforts with us here at the Reeve Foundation.
    Posted to Life (Forum) by PRC_Bernadette on April 26, 2010
  • Re: How To Videos

    Thanks CK, noted and changed!&nbsp; Great videos so far. How about you give us a preview of upcoming videos?
    Posted to Life (Forum) by PRC_Bernadette on April 23, 2010
  • How To Videos

    My friend, Chris Kennedy(CK) has started a project with funding by a grant from the Rick Hansen Foundation as a Quality of Life project. Aptly named,&nbsp; World On Wheels.&nbsp; CK was featured earlier on Reeve Foundation, Daily Dose.&nbsp; Chris has posted a series of ''How To'' videos to demonstrate ''How To'' for a quadraplegic. His most ...
    Posted to Life (Forum) by PRC_Bernadette on April 23, 2010
  • Re: Quote of the Day !!

    I would give up chocolate but I'm not a quitter!
    Posted to Life (Forum) by PRC_Bernadette on April 19, 2010
  • Re: Favorite Gadgets/ AT devices

    I am posting a few additional photos of the handybar. The first will allow you to see the seat belt cutter. It is set into the body of the handle and is highlighted in white.You can also see the indentations on the handle to allow for a good grip as well as the diamond tip point to break the window. Please note: This photo is a bit distorted due to
    Posted to Assistive Technology (Forum) by PRC_Bernadette on April 15, 2010
  • Re: Favorite Gadgets/ AT devices

    PRC_Bernadette:I thought I would start a thread where folks could talk about and post photos of some of their favorite gadgets/ AT that help make their lives easier.&nbsp; They can range from roller balls, knives, sliding boards, etc.Tell us why you like it, how you found the product (may help others to purchase one) and what you use the adaptive ...
    Posted to Assistive Technology (Forum) by PRC_Bernadette on April 15, 2010
  • Favorite Gadgets/ AT devices

    I thought I would start a thread where folks could talk about and post photos of some of their favorite gadgets/ AT that help make their lives easier.&nbsp; They can range from roller balls, knives, sliding boards, etc.Tell us why you like it, how you found the product (may help others to purchase one) and what you use the adaptive equipment for.
    Posted to Assistive Technology (Forum) by PRC_Bernadette on April 15, 2010
  • Re: Prayers to St. Jude

    Hi DeniseCan: Welcome to the Reeve Community Forums. I am glad you found our forums as a place to locate support and information.You have had some significant loses in the last 2 years. How is your grandson doing now? Did your family contact us for information to assist them? If not, we can help.&nbsp; We have an article on the emotional healing ...
    Posted to Tell us about yourself (Forum) by PRC_Bernadette on April 14, 2010
  • Re: 19 Year Old C-5

    I posted this in your other thread--figured I would post here as well. Looks like you have an outpouring of support.Hi: A friend of mine who is also a C5-6 read about your son and contacted me today. Patrick Rummerfield is an amazing guy and he wants to reach out to your son and to let him know what is possible.Please call me at the Christopher ...
    Posted to On Healing (Forum) by PRC_Bernadette on April 13, 2010
  • Re: Praying For a Miracle!

    Hi: A friend of mine who is also a C5-6 read about your son and contacted me today. Patrick Rummerfield is an amazing guy and he wants to reach out to your son and to let him know what is possible.Please call me at the Christopher &amp; Dana Reeve Foundation, Paralysis Resource Center and I will see that your son and Patrick connect.
    Posted to Tell us about yourself (Forum) by PRC_Bernadette on April 13, 2010
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