|
Showing page 1 of 5 (128 total posts)
< 1 second(s)
-
Dan,
I second that comment. Rest, relax and take care of yourself. I hear that 20 minutes of focused breathing can do wonders. Plus maybe it will help your lungs too.
Get well soon. We miss you!
-
I agree too that our technology is a great way to keep in touch. I have a big family too, but 95% of them live within a 20 minute radius of me. Sometimes I even run into them at the grocery store.
However, as for my immediate family (brothers, sisters, nieces, nephews and parents) there are a couple of things I don't want to find out about on ...
-
My kids want to get my husband this game called Mindflex by Mattel. Apparently you move a ball through some sort of configurable maze with the power of your mind. It looks like some minimal arm or hand function may be needed. But I guess your mind is the key to this game.
-
Iโm starting to wonder if technology is replacing normal human interaction. I had an interesting experience this week. On Wednesday night at 11:30 p.m., I get a text message from my sister. Of course Iโm not asleep yet, so I read it. It says โYou better look at Allieโs Facebook.โ Allie is our niece. Iโm not really a die hard FBer more a ...
-
Letting go of thoughts sounds like exactly what I need. Iโll have to trust you on the neural pathways part. But 20 minutes is seriously a very long time. Iโm not sure when it actually happened, but I can no longer just sit quietly and still for 20 minutes. Anytime I sit down, at about the 5 minute mark I start going over all the things that ...
-
Hi Judy,
Welcome, I am so sorry to hear about your mother. This must be so terribly difficult for all of you. That is something about SCI. It not only changes the person with the injury but also the entire family.
I know there are many of us here that can relate to what you are saying. The system is a very unkind place, and I often feel there
-
No Dan, none of this is very clear to me. That must be my problem. Itโs true, Iโm missing a lot of my life because I am merely trying to jump from one task to the next so that everything gets done and nobody struggles. That's my current mechanism I think.
The comments on your Philly blog were pretty enlightening. Merely sitting in one place ...
-
Dan,
Your advice sounds like just what I need, but why is it so hard to find that place where you are less afraid of your own fears? When some of the worst case scenarios seem to always come true in your life, it is difficult to quiet your mind and not be afraid of what it is telling you.
Several years ago this guy I knew from work asked me to ...
-
Dan,
Thanks for your comments. They have left me unable to form an intelligent response. Iโm sure I could come up with something in the bogus category, but Iโll try to skip that for now. I mostly just go back and forth wondering if I should have some genuine concern for myself or more likely my response is what does it really matter. Iโm not ...
-
Dan,
What do you think about those self-assessment mental health surveys? Iโm not talking about the stuff on Facebook but stuff from more legitimate sources like a mental health website, a brochure that you might find in your doctorโs office or maybe one passed out from your wellness center at work. Do you see any value in these types of tools?
-
Thank you both for your kind words of support and caring. Hopefully by this time next week I'll have it all behind me and be nearly recovered.
-
I agree with nearly everything you guys are saying and your thoughts are on the mark. I have great difficulty releasing my grasp on his care. Itโs not only his care but many other things around here too. Just the other day he (and his nurse) decided that they would stop by the bank machine. Right off the bat I felt slightly bad because this is ...
-
professirx:
Thanks for sharing all of this. I had no idea about I Believe TV. Sorry about your mojo, but it looks like you still got it goin on to me. Keep it up! Well not literally...oh, you know what I mean.
-
I wish it was over, but itโs not scheduled until the first week of Oct.; that is if I donโt chicken out or something else comes up.
I have no idea what would happen if I got seriously ill. I pray it doesnโt happen, and I will myself well every day to keep it from happening. I always have this feeling that everything would fall apart if I was ...
-
Peace214,
Welcome to the site. Iโm sure that Dr. Dan can offer you some advice on the feelings between you, your significant other and his mother. The only advice Iโll offer is to be very careful when it comes to finances especially since you are not legally married.
The only way to really do this right and keep yourself out of possible ...
-
Youโre right, this isnโt about counseling. I think itโs about a lot of things. Best I can figure this upcoming surgery is only highlighting what is always there. It is hard to put into words โwhat is always thereโ, but I think itโs the feeling of being like my husbandโs mother instead of his wife. This is my opinion from my experience and ...
-
Dan,
First let me say thanks for your compassionate words. You are very kind and understanding. Second let me tell you how I currently feel about marriage counseling for a caregiving spouse and a high level quad or I guess I mean me and my husband. I realize this is going to be like convincing a priest not to pray or maybe better said convincing
-
Warning: Caregiving rant about to be served up.
I was really distressed this week reading a dialog on another disability site and then when my husband seemed to support the same mentality. YIKES! The dialog was started by a wife and mother of 2 whose husband suffered a C5-C6 SCI 9 months ago. She posted in a caregiving forum stating that she
-
Oh and another thing. Too bad about your Eagles and Vick. The Indianapolis Colts have that nice Manning boy who added his name to our local children's hospital. No forgiveness required in our city.
The season starts soon...guess we will see what everyone is made of.
-
Forgiveness is a concept that is hard to grasp in my world. I guess I want it to be a magical instant when you say the wordโฆI forgive youโฆand poof everything miraculously changes. For me, forgiveness is not like that at all. Instead of some one time act, I think of it more as a process; a process that starts with a decision to let go.
I think ...
-
Frankly I donโt know how much insight I have right now into this discussion due to the present chaos that is surrounding my life, but this topic brought to mind an interesting experience I had last week.
I had been over at my parentโs house on Friday with my kids and my niece. They were swimming and my mom and I were kibitzing (as my
-
Oh Dan, you might be wrong on this one I really feel out of my mind; like Iโm drowning and every time Iโm about to surface for air I get pushed back down.
Good newsโฆ.yes we can get a new bed covered 100%. Bad news, they wonโt touch the old bedโฆagainst company policy. You could have guessed that one was coming. So my
-
Bed update: Here is the choice as best I can discern: We pay out of pocket for the repair even though my husband has Medicare and secondary insurance through his previous employer, or we order a new bed that will likely be covered 100%. What do you do? We donโt really want a new bed, but that seems to be the only option to ...
-
OK the latest is that we canโt get approval for the repair. The bed was purchased by his private insurance which is now secondary to Medicare. According to the DME supplier, Medicare wonโt pay for repairs unless they purchased the equipment.
On an intellectual level this doesn't seem possible. So if you get anything when ...
-
In case you wanted a visual, here it is. Apparently according to my husband this is a step above a car jack...who knew. You use this after you have jacked up the car to provide more stabalization. Just what I need, more stabalization. I wanted to post a picture of the massive bruise I got on my arm from trying to place ...
-
Dan,
I think I have discovered a new form of therapy. After my week of trying to manage an unmanageable health care system, I thought I needed something.
We have a broken hospital bed currently being held up by a car jack awaiting repairโฆwho knows how long that will take. We have a denied medication for the ...
-
The way I can relate to this concept of post traumatic growth is through my first marriage. I married when I was 25. A year after our marriage, my husband was diagnosed with colon cancer. After several surgeries and 2 different rounds of chemotherapy, he died 9 months after his diagnosis. I sat in a hospital room for 48 ...
-
Hi Mike,
Have you thought about contacting the Shepherd Center in Atlanta? It is one of the model SCI rehab centers in the country and treats many SCI patients. Perhaps you could find a match there.
I see where this could be a win/win situation with the right person. It is something I had never thought of, but it
-
RBF:
Thanks for your comments. I thought your insight about caregivers was very interesting. Over the years I have noticed a couple of types of caregivers. Some are able and willing to be directed, but others donโt like it at all. I have seen that the later group seems to like to care for babies, kids, and individuals that ...
-
Here is the answer to your question. Yes, I am willing to change. I never intended or wanted my self worth to be linked to some vigilantly-like management of my husbandโs SCI. In the beginning this role just happened out of necessity. Our relationship before SCI wasnโt like this at all.
From the moment of the
1
|
