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Showing page 1 of 7 (192 total posts)
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Hi aan1096:
First welcome to the site. What you have said is true. Insurance will not pay for a turning mattress unless he probably already has a stage 3 or 4 pressure sore, but by then it is too late. You are right; your SIL is surely exhausted.
Here is my story. My husband is a C3-C4 quad and really should only be in one position for a max ...
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First let me welcome you to the site. I hope you will come often and ask any question you might have.
Most major wheelchair manufacturers make sip-n-puff models for their wheelchairs. It’s just a matter of putting that controller on the chair. Are you looking for a wheelchair that your brother can operate independently? He has no arm function ...
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Hi ShelliRN,
First I will say welcome to the site. I don’t think I have any kind of good answer to your question, but I can relate to you some of my experience from being at Craig Hospital with my husband for 7 months.
My husband is a C3-C4 quad and has no function of his arms or hands. He has no contractures. We have religiously done range ...
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Hi Scarlet,
I can understand your guilt and desire to deny your feelings and needs. But as a wife to a high level quad for 8 years, I can tell you this strategy only works for so long. Soon it will be difficult to contain your feelings and over time will probably surface as anger, anxiety, resentment or who knows what else. I’m sure Dan can ...
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Ms. Sheehy is going to be on Dr. Dan's radio show on Monday June 7th at noon. I plan on listening in.
http://www.whyy.org/91FM/voices.html
I have just about finished reading her book. She presents some very valid insights, but I also had issues with some of her points. Go figure.
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Dear Christina,
First let me say welcome to the community and thank you for sharing your insights and experiences. I think it is always wonderful to hear how others manage through this lifestyle.
The funny thing is I could have written some of the very same words you have written except I feel they apply to my plight as well. I think that is ...
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Hi Millie,
Welcome to the community. I hope you will find a lot of support here. My children are not injured, but I know what you mean about kids approaching the teenage years. I have 2 sons that are 13 and 15.
My husband was paralyzed 8 years ago from the neck down. He is 6'2'' tall and weighs 200+ pounds. I knew I would have to have some ...
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Hi Vikas,
Glad you have joined and hope you will keep posting about your experiences. I hope you will find many friends and people to support you here.
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Hi Ivonne,
I am glad you have joined us and have begun posting. I know we can all learn a great deal from each other and support each other along this journey.
I look forward to your continued comments and thanks for sharing your experience.
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Valola,
Here is my advice:
Go and have fun. I understand you are nervous, anxious, and worried, but he has said to go, you want to go, you need to go so do it.
I know it is easy for me to type these words. But I have been in your shoes and in your dilemma. I have done both things; stayed home and was very sad I was missing out on my life and ...
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Scontr21:
First let me say welcome to the forums. I am glad you found this place and I hope that you will post often. I think the simple answer to your question is yes you will sacrifice many of the things you mentioned, but it’s that way in any relationship only a little more intense in a relationship like this. What level of injury does your ...
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Ricky's Mom,Have you filed an official written appeal? You should do this in conjunction with his doctor. I think I am the appeal queen and have filed so many appeals that I can't even count. I would say that well over half are successful.Bowel and bladder are skilled care at least under Medicare guidelines. In Indiana, if ...
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What about I'll Walk by Bucky Covington? That's the only one I can think of off the top of my head, but I'll keep thinking.
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Welcome to the forum and thanks for sharing your story with everyone. I'm sure that you will be able to inspire others. I hope you will continue to post and share your experiences.
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Hi Keith,
Welcome to the community. You definitely are not alone. I’m many more years down the road from you but have experienced most of what you have expressed.
One of the hardest things is something you also noted. It makes me really sad to realize how this role of caregiver has impacted my role of mom. ...
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Valola,
Welcome! I’m so glad you have joined the community. I spent many years denying that this lifestyle is a hard gig. I knew it in my head but didn’t want to let anyone else know it. It’s getting harder and harder to fake it these days. I know what you mean when you say nothing feels special anymore.
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Here’s my recent story of acceptance or lack there of; certainly not as dramatic as quadriplegia or baldness, but still. A while back I put this little tiny chip in my tooth trying to pull a needle out of a basketball. Yes I know, stupid idea, but I was in a hurry and didn’t have time to find the pliers. Finally I decided I ...
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halfpint52, Welcome to the community. I am so sorry to hear about your injury and your sadness. I hope you will find some support here. You might also want to post a question to Dr. Dan in the 'On Healing'' forum. He offers great advice for people struggling with all that SCI brings into their lives.Please keep posting and ...
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preysangel,Thanks for sharing your story. Seems like you have had both heartache and joy in dealing with your injury. I hope you continue to post and feel very welcome here in this community. I think you will also find this is a very nice and friendly place.
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Dan,
I finished reading The Wisdom of Sam last week. It’s a wonderful read, and I recommend that everyone pick up a copy.
If someone asked me what the book is about, I would never say it’s about autism in a child because really it isn’t. It’s a book about compassion, about love and about living and loving life ...
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Here's what I saw on a French disability site:
A new logo depicting 4 specifics types of disability: physical (impaired mobility), mental disability, partial sight or blindness and hearing difficulty and deafness has been designed. The symbols are displayed in airports and other public places and guide books. They indicate meeting points ...
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Welcome! I’m very sorry to hear about your son. He is still early in his recovery, but even now there are so many things he can do.. Does he have an accessible computer set up? My husband has no use of his arms or hands but has a set up where he can do anything on the computer. This opens up a whole new world to ...
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Humm..I have never watched the show, but now you have me wondering. Maybe I'll just have to watch it online.
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Shana,
I think you are correct with everything you have said about AD. Statistically the primary causes are bladder and bowel issues, with bladder as the number one cause. I don’t remember the numbers off the top of my head, but I’m pretty certain it’s this way. But also like you mentioned, AD can be caused by many ...
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I ditto what Bernadette said. The trailer is wonderful, and I can’t wait to read the book and your additional comments.
I have learned so many wonderful and amazing things from my sons. I had no idea what to expect from them after our accident and the tremendous changes to their father. What I saw was compassion, love, ...
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Bernadette,
No you don’t have to get rid of your stuff just because I stumbled across getting rid of mine. Actually this whole closet cleaning thing started for a different reason entirely. But now after nearly 8 years, I’m happy that it’s done.
I have this very dear friend at work that has a way to explain things like
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Shana,
Are you sure this is not AD? Have you checked his blood pressure when this is happening? My husband’s level of injury is much higher, but he definitely gets the sweating and certainly weird spasticity when AD begins.
I can also tell you that over time his neuropathic pain and those types of sensations you ...
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Hi Shana,
So sorry about your dad, but I am glad you have found this place. There are all sorts of people on this forum. The folks from the Paralysis Resource Center are a wealth of information. There are people with all levels of SCI here. And there are also people like me and you, family members, spouses, or ...
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Dan,
FYI, you never annoy me; I guess you’ll have to try a lot harder if that is your goal. However your comments did move me to action a little quicker than I had anticipated. The answer to your question is I’m not really saving the stuff for any good reason at all. I think the problem is really much like your golf ...
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Bernadette,
Glad I’m not alone. Thanks for your comments. It just seems strange that I can’t get rid of HIS stuff. The funny thing is I did ask him. First, he didn’t even realize most of his stuff was still upstairs. Then he said “why don’t you just get rid of it.”
Hummm…good question. ...
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