Reeve Foundation Paralysis Community

Hi aan1096: First welcome to the site. What you have said is true. Insurance will not pay for a turning mattress unless he probably already has a stage 3 or 4 pressure sore, but by then it is too late. You are right; your SIL is surely exhausted. Here is my story. My husband is a C3-C4 quad and really should only be in one position for a max ...

First let me welcome you to the site. I hope you will come often and ask any question you might have. Most major wheelchair manufacturers make sip-n-puff models for their wheelchairs. It’s just a matter of putting that controller on the chair. Are you looking for a wheelchair that your brother can operate independently? He has no arm function ...

Hi ShelliRN, First I will say welcome to the site. I don’t think I have any kind of good answer to your question, but I can relate to you some of my experience from being at Craig Hospital with my husband for 7 months. My husband is a C3-C4 quad and has no function of his arms or hands. He has no contractures. We have religiously done range ...

Hi Scarlet, I can understand your guilt and desire to deny your feelings and needs. But as a wife to a high level quad for 8 years, I can tell you this strategy only works for so long. Soon it will be difficult to contain your feelings and over time will probably surface as anger, anxiety, resentment or who knows what else. I’m sure Dan can ...

Ms. Sheehy is going to be on Dr. Dan's radio show on Monday June 7th at noon. I plan on listening in. http://www.whyy.org/91FM/voices.html I have just about finished reading her book. She presents some very valid insights, but I also had issues with some of her points. Go figure.

Dear Christina, First let me say welcome to the community and thank you for sharing your insights and experiences. I think it is always wonderful to hear how others manage through this lifestyle. The funny thing is I could have written some of the very same words you have written except I feel they apply to my plight as well. I think that is ...

Hi Millie, Welcome to the community. I hope you will find a lot of support here. My children are not injured, but I know what you mean about kids approaching the teenage years. I have 2 sons that are 13 and 15. My husband was paralyzed 8 years ago from the neck down. He is 6'2'' tall and weighs 200+ pounds. I knew I would have to have some ...

Hi Vikas, Glad you have joined and hope you will keep posting about your experiences. I hope you will find many friends and people to support you here.

Hi Ivonne, I am glad you have joined us and have begun posting. I know we can all learn a great deal from each other and support each other along this journey. I look forward to your continued comments and thanks for sharing your experience.

Valola, Here is my advice: Go and have fun. I understand you are nervous, anxious, and worried, but he has said to go, you want to go, you need to go so do it. I know it is easy for me to type these words. But I have been in your shoes and in your dilemma. I have done both things; stayed home and was very sad I was missing out on my life and ...

Scontr21: First let me say welcome to the forums. I am glad you found this place and I hope that you will post often. I think the simple answer to your question is yes you will sacrifice many of the things you mentioned, but it’s that way in any relationship only a little more intense in a relationship like this. What level of injury does your ...

Ricky's Mom,Have you filed an official written appeal?  You should do this in conjunction with his doctor.  I think I am the appeal queen and have filed so many appeals that I can't even count.  I would say that well over half are successful.Bowel and bladder are skilled care at least under Medicare guidelines.  In Indiana, if ...