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looking for info

Last post 07-15-2010, 8:34 AM by aan1096. 2 replies.
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  •  07-07-2010, 11:13 AM 72032

    looking for info

    I have a very close friend that has been paralyzied for 12 years . The town that he lives in the doctors don't know anything about paralysis. He has a pain pump ,but the spasms are so intense that I even hurt for him. The pump has baclphin and morphin that doesn't help. We don't know what to do or where to go he has a doctor that takes care of his pump, but he specializes in ms patients. In dyer need for help.
  •  07-07-2010, 12:36 PM 72033 in reply to 72032

    Re: looking for info

    Welcome here!

    I am glad you found us.

    As an information specialist, I can mail you information on spasticity and on physiatrists (rehab doctors) that treat spinal cord injuries and the secondary conditions of SCI.

    Please call me (or any information specialist). The number is (800) 539-7309. My extension is 7202.

    I look forward to hearing from you.

    Sincerely,
    Donna
  •  07-15-2010, 8:34 AM 72114 in reply to 72032

    Re: looking for info

    trkdp,

    My brother has a baclofen punp for his spasms and has had it  for 6 months now. His spasms were so bad he would nearly kick the therapist in the forehead while she was stretching his legs! He gets the medicine increased periodically a little at a time as needed. He does experince vibration sensations afterwards but that subsides after the first day.They feel slow increases of medicine is best. They seem to have calmed down considerably! since his last increase, which he is still on a low dosage. He was told that some spasticity can be a plus for circulation and muscle tone. He also takes Neurotin and Lerika for pain and stinging in his hands and legs that has not subsided as of yet. I hope this has helped you some and your imput on how the morphine is helping with the pain would be appreciated here.

    p.s. I really hope your friend can find a doctor that can relate to his needs but untill then you will find much help and advice here with the Christopher Reeve Foundation.

    best wishes,

    aan

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