Reeve Foundation Paralysis Community

Caregivers,

There are a lot of great organizations out there that provide support and resources for caregivers. Listed below are a few great resources to check out.

Paralysis Resource Center - Caregivers  http://www.paralysis.org/site/c.erJMJUOxFmH/b.1297513/k.1C01/Caregivers.htm

Well Spouse Association http://www.wellspouse.org/

Family Caregiving 101 http://www.familycaregiving101.org/

Share the Care http://www.sharethecare.org/

National Alliance for Caregiving http://www.caregiving.org/

If you have specific question concerning caregiving please contact the Paralysis Resource Center at 1-800-539-7309.

All the Best....

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"Knowledge is knowing a tomato is a fruit... Wisdom is knowing not to put it in a fruit salad"

Here are some additional ones:

Various caregiver resources:

http://www.makoa.org/caregiver.htm

Caring Bridge (free site for keeping friends and family informed about your loved ones progress):

http://www.caringbridge.org/

National Transplant Fund (will help you set up account for fund raising that will protect funds from interferring with eligiblity for Medicaid and other need-based programs):

http://www.transplantfund.org/

Range of Motion Exercises (how to provide them correctly for your loved one):

http://www.irrd.ca/education/presentation.asp?refname=e1a2

PCA/Attendant Care Resources

"Attendants from Hell" (an excellent book on PCA services):

http://www.banis-associates.com/books/attend.htm

PCA Training Module (funded by the PVA):

http://www.hcinteractive.com/programs/sci/

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Moderator