You may also want to get in touch with some national based advocacy groups to see if they are of any assistance. I am going to list a few below along with a little bit about each group and their website.
DREDF Disability Rights Education and Defense Fund
http://www.dredf.org/
Founded in 1979 by people with disabilities and parents of children with disabilities, the Disability Rights Education and Defense Fund, Inc. (DREDF) is a national law and policy center dedicated to protecting and advancing the civil rights of people with disabilities through legislation, litigation, advocacy, technical assistance, and education and training of attorneys, advocates, persons with disabilities, and parents of children with disabilities.
National Disability Rights:
http://www.ndrn.org
http://napas.org
The Protection and Advocacy (P&As) Systems and Client Assistance Programs (CAPs) comprise the nationwide network of congressionally mandated, legally based disability-rights agencies. The National Association of Protection and Advocacy Systems, Inc. (NAPAS) is the voluntary national membership association of the P&As and CAPs and it assumes leadership in promoting and strengthening the role and performance of its members in providing quality legally based advocacy services.
Patient Advocate Foundation
www.copays.org
Newport News, VA
Phone: 866-512-3861
A national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of financial stability. PAF serves as a liaison between patients and their insurer, employer, and/or creditors to resolve insurance, job retention and/or debt crisis matters relative to their diagnosis through professional case managers, doctors and health care attorneys.
Take Care
"Knowledge is knowing a tomato is a fruit... Wisdom is knowing not to put it in a fruit salad"
