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New to SCI

Last post 05-08-2009, 4:53 PM by FuschiaFan. 3 replies.
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  •  05-04-2009, 12:07 PM 52473

    New to SCI

     Hello out there.  My fiance was injured in a auto accident 2/4/09.  He is a c5 incomplete, with fair arm movement. I am struggling to find the things he needs, such as a place to live, adaptations for my minivan, hoyer lift and shower chair.  I really need some local resources, out of Joplin Mo. I will be his main caregiver, but i'll have to hire some help from independent living because I'm not able to lift him, owing as I am a rt. arm amputee.  He is still in the rehab center, MRC.  Any one got any suggestions? Email me @ awnistymd@rocketmail.com or post back. 
  •  05-04-2009, 12:59 PM 52481 in reply to 52473

    Re: New to SCI

    As we always say ... we're glad you're here, but not the 'why' you're here.  I don't have alot of resources to give you personally, but you may want to check out www.carecure.org which has alot of information on the main page and in the various forums (although beware, it can be a bit of a jungle there on the forums). 
  •  05-04-2009, 1:05 PM 52485 in reply to 52473

    Re: New to SCI

    Hello;

    Here are a few things to get you started. 

    A list of manufacturers and distributers in your state:  http://www.abledata.com/abledata.cfm?pageid=160165&stateid=32457&state=Missouri   You can find some of the durable medical equipment items you may need. 

    Housing:  www.accessibleapartments.org  http://www.accessiblespace.org/ http://www.accesswa.org

    You may also want to query the words universal design and see if you can modify his previous home. 

    If you decide to modify his home but are worried about finding the money to do so -- here is an article about programs that might be able to assist.  http://www.unitedspinal.org/publications/action/2006/03/24/affording-accessibility-home-modifications/

     

  •  05-08-2009, 4:53 PM 53227 in reply to 52473

    Re: New to SCI

    The staff at the rehab center should be linking him and you up for resources for finding housing, and getting equipment authorized by his insurance and ordered. Is he uninsured? If you have to purchase any of this out of your own pocket, then used is a good option. Check out eBay as well as www.disableddealer.com and the Equipment exchange forum at CareCure.org as well as Skip's List. The same goes for vans. Used is best at this point, assuming he will not be driving for a while, and will be riding as a passenger in his wheelchair (much cheaper). They should also set him up with paratransit if it exists in his area.

     

    Was he working or going to school before? If so, the Dept. of Voc Rehab may help some with transportation if he has a plan to return to either with them. Again, the rehab center should be helping him link up with DOR if that is an option.

     

    Talk with his case manager. Is this a CARF accredited facility? If so, they have those standards to uphold, and this includes linking him with appropriate resources and advocating for him.

     

    No one should be manually lifting a fully dependent person. That is what the lift is for. I would also recommend that he have a hospital bed with an appropriate pressure reducing mattress, and an over-bed table.  This will make his care easier for himself and for caregivers. Even if you could lift him, it is NOT a good idea for a lover or spouse to be the only caregiver. If you take this on by yourself, it will be very difficult to maintain your role as his lover. It has been the death of many relationships. Use care that he is entitled to.


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