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I am sad

Last post 10-26-2008, 7:03 PM by sjean423. 4 replies.
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  •  10-24-2008, 9:13 PM 30496

    I am sad

    Today I went to pick my kids up at school just like always. I had been home all afternoon and I haven't been feeling really well. My kids knew I went to the dr yesterday because i usually go eat lunch at their school on the Thursday of the week they are at their dad's. I just have another uti.

    Anyway I live about 6 miles from their school. We weren't going anywhere after I picked them up so I decided I didn't feel like tearing apart and loading my chair. I left it in the garage and went to their school. My son jumps in the truck and gives me a big hug from the back seat. He never does this. He's 8 now and I have to beg for kisses. It's gross and embarrassing. I said did you have a good day or what? He said Yes, are you better?  I just said well I got some antibiotics. I was kind of confused, I have had a billion utis lately and he knows all about it because I keep peeing the bed. He finds it humorous.

    Anyway then he said how'd they fix you? I said what do you mean. I'm distracted because I'm trying to leave the parking lot. he said well Where's your chair? I realized he thought I was better because I didn't bring my chair. I had to pull over because he looked so sad when I said Oh honey I just left it in the garage. I just gave him another hug and went on. My daughter never said anything during all of this. She's 11 though. I'm pretty sure she was busy catching up on her texting after being in school all day unable to use her phone.

    We have a full life but I hate how this affects their life. It is still hard to explain to a child why Moms and doctors can't fix everything. We are supposed to be the fixers and protectors. It must be scary to a child to realize at such young ages some things can't be fixed. My son was 5 when I had my accident.


    I just came back from yesterday.
  •  10-25-2008, 5:47 AM 30514 in reply to 30496

    Re: I am sad

    It is a hard reality that our kids lear but they do learn and accept. I have a friend that is a double amputee and her daughter would crawl and drag her legs to her mom to get up in the morning. She understood even as a toddler.

    My sons have never known me any other way, I had my SCI before they were born. I will never forget when my youngest was in 2nd grade, he finally asked, "Mom why do you use those funny crutches?" Someone asked him and he didn't have an answer.  It had never occurred to him to ask, it was just part of me. I felt sad because someone else triggered the question but at the same time happy that for all those years, I was just mom.

    Hang in there, sounds like you have a remarkable son who loves you lots. Hugs and kisses help lots to ease the sting.

    Keep posting


    Thank you,

    Every day I wake up is a good one.
    phf 59-08
  •  10-25-2008, 4:44 PM 30547 in reply to 30496

    Re: I am sad

    A few months ago my nephew and I were watching a Disney video. He is 8.  Out of the blue he turned to me and said "when are you going to learn to walk again?" This completely blew me away because I thought he understood that I was not going to walk again. Well understood as well as an 8 year old can.


    To make a long story short, it turns out he had taken the experience of watching his younger twin siblings learn to walk and but had come up with a theory that I just needed to learn to walk again and that would fix everything. The twins had two very different timelines when it came to walking. One was wobbling around on his own at 9 months and running at 10 months. The other was a late walker and didn't really get the hang of it until 17 months or so. Even now at 20 months she isn't all that stable and falls a lot. As he later explained it to me, he figured that when people learn to walk some just take longer because it took his sister so much longer than it had taken his brother.  And he concluded that my injury just meant that I had to learn to walk again but that it was taking longer for me.  It broke my heart because I think this idea had been forming in his head for some time and to him it made perfect sense logically. He was so certain about it.


    I can still remember how hopeful and serious he sounded as he told me this--and how I had to shatter his hope by telling him that wasn't going to happen. Watching his face fall and to see him start crying was more than I could take. I think it was especially hard because of all my nieces and nephews around that age, he was the one who seemed to adjust the best to my injury. My equipment fascinated him and he never showed any sadness or anger as some of the others had.


    Anyways I just shared that story because I so agree with what PRC_Bernadette said about it being a hard reality for kids to learn but that they do learn and accept. We have been able to move past that and I do think he does finally understand now better than he did before. I would have liked to have saved him that pain of shattering his wrong ideas because I know they were a safe way for him to deal with something he didn't really understand. I also agree with you ifonlysandwhatifs, it must be very scary to have your world view shift like that at such a young age when somebody you love has to deal with something that can't be fixed.


    I have sometimes wondered if having to deal with the reality of my injury will help make my nieces and nephews to be a bit more aware of the differences in people at a young age, and maybe even help make them a little more compassionate and willing to help others than if I wasn't hurt. I don't think a child needs to be faced with a trauma to develop those qualities, of course. I just wonder if maybe they will learn it earlier than others might?


    Since I don't have kids of my own, I sometimes worry I am approaching things wrong with my nieces and nephews...if that makes any sense. Hearing what parents themselves experience (both the ups and downs) and how they deal with sci issues when it comes to their own children is very helpful for me. Thanks for starting this thread. I understand that sad feeling.  I am glad you posted. I hope today was a better day.

     

     

     

      


    "Don't be silly, Toto. Scarecrows don't talk. "
  •  10-25-2008, 8:24 PM 30566 in reply to 30547

    Re: I am sad

    Our sons were 6 and 8 when their dad was paralyzed.  They are now 12 and 14 and growing into young men.  The other day I had my husband in his standing frame.  Our son stood beside him and was so astonished how tall his dad was.  He is just about 6'2", not abnormally tall but what made me sad is to think that they barely remember when their dad was standing.  It hit me that for about half of their young lives they have only seen their dad in a chair unable to move his arms or legs.  It makes me really sad to think that they are forgetting what he was like on his feet.

    They have asked me a couple of times if I ever think he will be "cured".  That is a hard one for me to answer.  I guess the reality is that I think it won't happen in my husband's lifetime, but I just don't want to tell them NO, I don't think it is possible.  I usually say something like..well lots of things may be possible in the future so we will have to be patient and see.


    Trish

    "Life isn't about waiting for the storm to pass...it's learning to dance in the rain."
  •  10-26-2008, 7:03 PM 30672 in reply to 30547

    Re: I am sad

    Haiku, I am wondering if he seemed to adjust so well, as he was adjusting to HIS understanding of the issue .... a much easier one to accept? 

    I am sure it will have an effect on your neices and nephews as they grow up.  My daughters were in 8th and 10th grade when I was hurt.  They certainly had to grow up faster.  They had a lot more responsibilities to take on, especially when I was in the hospital, and the early months home.

    But what I find particurally interesting:  Megan is now a sophmore in college, majoring in PT.  Melissa is a senior in high school, applying to colleges, as an OT major. 

    Ifonly;  My eyes teared up reading that.  It must have been so hard to explain that he was mistaken.  mine were older when I was hurt, and I don;t know if it made it easier or harder.  It was easier to explain, because they understood.  But it was harder, because they understood as well.  And I wasn;t the one doing the explaining really either. 

    They were there at the time, I realized recently that we really never discussed the accident from their viewpoint. 

    T 7-8 since 2005
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