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Daily Dose

  • We have flowers too!

    Next weekend is Valentine's Day. So this weekend, before and after the Super Bowl, you should be thinking Valentine.

    A quick aside, I did get an email from a V-Day hater, and our own assistant editor here -- Janelle -- is one too. For me V-Day was always about expressing love for the women in my life, whether it be a girlfriend or mom or great aunt. We are all inclusive here!

    That said, we have been working with giftback.com for a few years now. They have a great selection of stuff someone would actually want and eat/use/cherish.

    I got my wife flowers last year. Simple but elegant and very appreciated. This year I'm thinking brownies, or cookies, or fruit, or popcorn, or steak. Maybe I should go to lunch now.

    Ten percent of everything you buy through them via this link goes to us

    Have a look.

    Rob

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  • To My New-Found Valentine

    Bob became my full-time caregiver. I felt like a burden, but didn't tell him. Bob was overwhelmed, but didn't tell me. We cried by ourselves. If only we had cried together, we'd have grieved and started to heal. No longer best friends, the words to "Always" were meaningless.

    When the things you've planned
    Need a helping hand,
    I will understand
    Always, always.

    The story of how Saralee met her husband Bob. Sticking it out through thick and thin -- always! Another insightful essay from Saralee Perel, who has been sharing bits and pieces of her life living with paralysis with us for the last couple of years.

    Not to give anything away, but the photo is of Saralee, Bob and the The Cape Cod Surftones in her living room. Now, you have to read it, right?

    Read the rest of Saralee's Valentine's Day story here.

    Read more of Saralee's work here.



    Rob

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  • Send a card for the Foundation

    We have made this pretty easy. We commissioned a card from a very talented artist -- Isabell Villacis -- who works with one of the programs we support with Quality of Life grants -- A.R.T.

    Artistic Realization Technologies creates systems that enable the uncompromised creative self-expression of people with the most severe physical challenges, most of whom do not speak or have the use of their hands.

    Check out her work and send a Valentine's Day card. We are proud to offer these wonderful prints and you get a wonderful reaction from your friends and family.

    Rob

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  • Make time to play

    I woke up this morning all about sports. Maybe it's because the soon to be world champs again Phillies pitchers and catchers report in less than two weeks. Could be the temperature in this part of the world actually got up to 34 degrees. Heat wave!

    Head over to our Paralysis Resource Center and check out the links with have for rugby, golf, SCUBA diving, handcycling, and basketball. And of course our Life Rolls On division will teach you to surf. That's all, just go surfing.

    Check our our sports and competition section.

    Rob

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  • Try a little sled hockey

    Sled hockey (also called sledge hockey) is growing. Players in New Jersey are making sure it keeps growing.

     Disabled hockey players and their coaches made the rounds of 54 ice hockey arenas in the state over the weekend, carrying their message that hockey is a therapeutic sport and urging arenas to schedule time for disabled players on the ice.

    Read the rest.

    Read more about Winter Sports for People Living with Paralysis including hockey, skiing, and luge. Yes Luge. Watch the skiing video, too.

    Don't forget the 2010 Paralympic games take place in Vancouver next month.

    The photo above is from SledHockey.net with teams in New Jersey and PA.

    Rob

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  • New video: Power soccer

    Power Soccer is the first competitive team sport designed and developed specifically for power wheelchair users.

    These participants include persons with quadriplegia, multiple sclerosis, muscular dystrophy, cerebral palsy, head trauma, stroke, spinal cord injury and other disabilities.

    Power Soccer combines the skill of the wheelchair user with the speed and power of the chair itself, to participate in an extremely challenging game similar to soccer.

    Watch the video.

    The photo is from the U.S. Power Soccer Association.

    Rob

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  • Paige's 2009 ING NYC Marathon race report

    Paige and her family are wonderful. A hard copy of a letter from her aunt was floating around the office. I read it and said, This is great forward me the email so I can post it online. There was no email. Paige's aunt wrote an actual letter to our President and CEO Peter Wilderotter.

    I sent the aunt an email and got this email from Paige:

    Hi Rob...

    My proud Aunt Beverly sent Peter a copy of something I called a "marathon race report"...  word has it that you asked her to send it to you electronically.

    I wrote this race report because it was suggested by marathoners before me to write my feelings down, as the feelings become so intense during the whole marathon experience.


    Paige's race report captures what it is our Team Reeve athletes tell us all the time. Take a minute to see what Paige has to say. It'll make you feel good the rest of the day.

    Paige is pictured here with her friend Jon Zakarin.

    Read Paige's Marathon Race Report.

    Rob

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  • What you should know about preservation of upper limb function following SCI

    Strain on the upper limbs is prevalent among wheelchair users, with the impending risk of experiencing a painful and potentially disabling injury. This guide offers information on how to protect your arms through; recommendations on selecting and setting up equipment, exercise routines to maintain strong and healthy arms and shoulders, and tips on arranging your environment to lessen stress on arms during day-to-day activities.

    Download it for free from our friends at the Paralyzed Veterans of America.

    Check out our lending library for books and videos about paralysis and spinal cord injury. It's free.

    Rob

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  • Offering care for the caregiver

    There was a nice piece written by a medical doctor in the New York Times recently about what a tough job it is to be a family caregiver.

    Unless you've done it, it's hard to imagine. I remember how hard it was on my mom to handle my grandmother, and she didn't have the added complication of living with some kind of injury.

    For all our assertions about the importance of caring in what we do, doctors as a profession have been slow to recognize family members and loved ones who care for patients at home. These “family caregivers” do work that is complex, physically challenging and critical to a patient’s overall well-being, like dressing wounds, dispensing medication, and feeding, bathing and dressing those who can no longer do so themselves.

    Many of these caregiving tasks were once the purview of doctors and nurses, a central component of the “caring professions.” But over the past century, as these duties increasingly fell to individuals with little or no training, doctors and even some nurses began to confer less importance, and status, to the work of caregiving.

    Read the rest.

    We have resources for caregivers in our Resource Center.


    Rob

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  • The perfect Valentine's Day gift

    We had a great response to the e-card we did for the holidays, so we thought we would keep it going for Valentine's Day. For a $20.00 contribution we'll send an e-card to a loved on for you.

    But the real story here is the artist Isabell (pictured here). Isabell works with Artistic Realization Technologies.

    A.R.T. creates systems that enable the uncompromised creative self-expression of people with the most severe physical challenges, most of whom do not speak or have the use of their hands.

    Here is what Tim Lefens, who runs that program sent us about Isabell:

    Isabell's fierce dream was to get to Paris, the home of her hero Picasso. With panache she drew in people who would do a fund-raiser so she could fly to the City of Lights. She created a huge sculpture based on the Eiffel Tower.

    She created a huge sculpture based on the Eiffel Tower.

    When the Christopher & Dana Reeve Foundation asked if any of the A.R.T. artists were interested in creating an original painting based on Valentine's Day, Isabell went for it.

    "Do you have an idea of what you're going to paint?" I ask.

    "Yes. The Eiffel Tower,in front of it a heart, across that the word: 'love' in French.

    My goodness how romantic and how it has everything.

    "Do you know what colors you'll need?"

    "Yes. Black, red, and metallic purple."

    As always we are blown away with what these passionate artists come up with.


    I need to meet Isabell!

    Rob

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  • Aging with a spinal cord injury

    Our friends at the Northwest Regional Spinal Cord Injury System in the Department of Rehabilitation Medicine at the University of Washington held a forum this past summer on "Aging with a Spinal Cord Injury." They have just posted streaming video and written report.

    People with SCI are living longer than ever. What are the special concerns for those aging with a spinal cord injury? Rina Reyes, MD, Medical Director of the UW SCI Rehabilitation Program and Assistant Professor in the UW Department of Rehabilitation Medicine, takes you on a tour of the aging body, describes how changes brought on by aging affect individuals with SCI, and explains what you can do to manage these changes and maintain optimum health. Ivan Molton, PhD, Rehabilitation Psychologist and Acting Assistant Professor in the UW Department of Rehabilitation Medicine, shares research findings about psychological health in those aging with a spinal cord injury.

    Have a look.

    Rob

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  • Team Reeve All Star running 151 miles

    The Marathon des Sables is a 6 day, 151 mile (243km) endurance race across the Sahara Desert in Morocco. Gary Guller is a Team Reeve All Star. He is running MdS and raising money in the process for the Reeve Foundation.

    (He has a great promo video for the race on his blog.)

    Guller lost the use of his arm when he was spinal cord injured in a mountaineering accident just as he had found his life's passion: alpine climbing. He stunned a medical team at Duke University by asking to have his paralyzed arm amputated. He has inspired others ever since to continue onward and upward.

    Guller led the largest cross-disability group to reach Mt. Everest Base Camp at 17,500 feet, before setting another record, becoming the first person with one arm to summit Mt. Everest (pictured here)!

    A lot of people call us here and ask how can I help. You don't have to run 151 miles or climb Mt. Everest. But you might have something you're passionate about from bowling to swimming to mountain biking that you can organize an event around and raise money for us.

    We'll help you. Read more about becoming a Team Reeve All Star.

    Support Gary Guller by making a donation today.

    Rob

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  • Visit our new NeuroRecovery Network Center

    NeuroRecovery Network is one of the coolest things we do. We have centers across the country that are developing and expanding access to activity-based therapies, resulting in improved health, quality of life, and function.

    It's focused on locomotor training. A team of therapist get people who qualify, based on having an incomplete cervical or thoracic spinal cord injury and having some movement or muscle tone in their legs, up in a harness over a treadmill. They help them relearn to walk.

    (Pictured is a patient and therapists at Kessler Institute for Rehabilitation in New Jersey.)

    That is my very short, simple version. There is a lot more to it than that. The key part is, that all the centers are not just about therapy, they are about research. Tons of data is collected to help improve the process not just for one person, but for everyone.

    The grandness of it all is why we have dedicated an entire section of our website to it. Way better explanations than I just gave, videos of the process, and heart warming success stories. You can also see where the centers are, and apply to get in right online.

    Go to the new online NeuroRecovery Network Center.

    Rob

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  • Daryl "Chill" Mitchell on Desperate Housewives

    Reeve Foundation ambassador, actor, and star of the Fox show Brothers (which, no matter what Fox decides, is/was one of the funniest shows ever), Daryl "Chill" Mitchell will be on this Sunday's episode of Desperate Housewives (9:00 p.m. on ABC).

    Read more about our ambassador program and meet the other folks who are taking our cause to the world.

    Rob

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  • Christopher Reeve is Superman

    Christopher will always be Superman. But not just because he played the part he is obviously was born for. He touched lives and continues to do so.

    My Enduring Relationship with the Man of Steel
    Read this wonderful blog post by Rev. Laurie Sue Brockway (pictured here with Christopher), former editor of Playgirl magazine, where she talks about how Superman and Christopher affected her life.

    YouTube Fan Tribute
    Web producer Julie came across this fan tribute the other day set to Michael Jackson's Gone to Soon. It was just posted in November. It includes a bit with Christopher from the Muppet Show.

    Christopher Reeve as Superman Art
    DC Comics is celebrating it's 75th anniversary by commissioning a couple of works of art -- Christopher Reeve's quintessential portrayal of Superman presented in bust form, and a statue that, in their words, is "One of the most fondly remembered depictions of Superman is now available as a commemorative statue exclusively from DC Direct. Christopher Reeve strikes an iconic pose from the classic 1978 feature film Superman – the movie that made the world believe "a man could fly" and turned the actor into a star."

    The wonderful folks at DC are donating $5.00 to the Foundation from every statue sold.

    I'm looking at the statue as I write this. It is truly super and a fun piece to have in your office.

    Check out the bust. Check out the statue.

    Rob

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