Hi, Leah-so sorry to hear about your Mom. My husband was diagnosed w/peritoneal meso exactly 1 yr ago, and has been relatively stable since last December, after finishing chemo in late Oct. one of his first symptoms that made us think something was wrong were terrible night sweats. Unfortunately, all he was doing was taking a towel to bed-they just happened, mainly when he was sleeping. Wish we had more ideas for you. We-the foundation community-will be support for you. Have you contacted Mary H-she's the Nurse Practioner for the foundation and is a wonderful resource. I you would like to talk privately, she has my personal info, and knows I'm open to sharing it.
Your phrasing on 'we' and treatment is right on-it's her, plus everyone involved in her support system. Will she be having chemo? If so, just reassure her that it does pass, and you may want to have a nice wig in case she loses her hair. Many salons and Nationa Cancer Institute have wigs available for cancer patients. It's also really important that you take really good care of yourself, and find the right people for her treatment. I don't know what state you live in, but there are meso specialists-again, Mary has all that info. We live in Alaska, so really have no easy access to specialists. And Denis has decided no more treatment so we take each day as a true gift-he's lived 7 moths longer than his doctor thought he would. You and your Mom take care of yourselves. Many thoughts and prayers, Rose