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It sounds like you are doing a wonderful job. My dad went fairly fast at the end, once we knew it was spreading, and it was pretty hard to have him home for that time. My mom was able to take FMLA and be home with him all the time. He was still strong, and starting to lose his mind, and it was always on the forefront that if he didn't stay mostly under control he would need to go back to the hospital.
Also, for as many times as he said he wanted to go home, he was actually terrified when he left the hospital. It gave him comfort, I think he believed his pain would be better controlled in the hospital, he'd have better care if his breathing became a problem (a big fear of his).
You are really doing a fantastic job. I was exhausted by being a caretaker, and I was only secondary, my mom was primary. To be doing it all yourself, I really commend you.