Hi when the patient is nearing the end are there any typical signs in meso to look out for?

Lynn, if you want to call me, I'll share our experience with you by phone.

Toward end of Marty's life, the Hospice nurse would come in and we would hug and grin and just shake our heads sideways like and she was amazed that he just "did not want to go!" Call me 480.963.9432 Lois

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Lois, Poolboy's mermaid
Marty was stage 3/4 - pleural meso 3/9/07
fought valiantly 27 months
gone to Heaven June 16, 2009

Hi Lynn, call or email privately and we will help you through this. Mary 443 977 0312 mhesdorffer@curemeso.org

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Mary Hesdorffer, NP
Medical Liaison, Mesothelioma Foundation

Hi thanks but im in new zealand

Hi Lynn,

Believe, my heart reaches out to you!
my home email is lomarty87@yahoo.com if you'd like to email me and tell me kinda what is going on right now or any ques and then I will email you back and try to help you in any way that I can. Lois

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Lois, Poolboy's mermaid
Marty was stage 3/4 - pleural meso 3/9/07
fought valiantly 27 months
gone to Heaven June 16, 2009

Hi Lynn,
You aren't alone, I'm in it with you. Don't know if that helps, but when I'm watching Dad sleep, I often think of other people in this situation, and I know all of our hearts are hurting the same.
I hope the days ahead are gentle ones. Diane

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Diane
Caregiver of Thomas (my Dad,82)
Pleural epithelial meso
dx 11/10
Our battle ended March 16, 2012. Together.

My dad seems to have developed lumps under the skin in chest area, is this the lymph nodes

Lynn, Marty had one meso tumor that was clearly close to the skin --- it was not a 'round' lump, but had the feel like a raspberry, or blackberry --- like a bunch of little pods. It was meso tumor close to skin, multiplying. At first it was about the size of a quarter --- I would keep measuring it's diameter and watched as it continued to increase in size in both diameter and 'a higher bump'. It never did protrude through the skin.
Lois

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Lois, Poolboy's mermaid
Marty was stage 3/4 - pleural meso 3/9/07
fought valiantly 27 months
gone to Heaven June 16, 2009

Hi does anyone know if you can fly overseas when in late stage of meso

There are many considerations to take into accouant. If he is on O2 you will need to make specific arrangements for oxygen on the plane as well as oxygen for your stay. Are you covered by any insurance policy should your loved one become ill and require doctors visit or hospitalization. Are you prepared to accept that your loved one may become unstable and unable to get back home? These are just a few things that you need to consider before traveling away from family and support with any patient in an advanced stage of illness. Others may also wish to weigh in based upon their experiences. Mary

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Mary Hesdorffer, NP
Medical Liaison, Mesothelioma Foundation

He wants to do a 30 hour flight, no he isnt on oxygen, i am concerned about his lungs at high altitude

Lynn, if your dad does decide to travel by air, b4 he does, click on my name and search for 'on the road again' or something like that .... or airport or plane in the search.


I came back to insert this paragraph! Traveling in a plane, the plane is pressurized, and if your dad does not require ox at home, I suspect that while in a pressurized cabin, he would not require it either! Hvr, if he is traveling to a 'high altitude' area like up in the White Mountains here in Arizona, the altitude is above 6,000 feet and people who have emphysema or heart conditions or other respiratory probs do not require ox in the low desert, but when up in the 'high country' of the mountains, I know of one lady who uses oxygen in summers while she lives up there, then not need down here in desert... Hope that helps... No on with what I wrote earlier b4 inserting this para..... --

I had paper signed by doc that Marty cancer patient, would take Ensure or Boost through security, and even frozen foods. Also make sure you take a CD of his latest radiology tests and hard copy (printed report) of the radiologist findings. If have to take your dad to the ER at any location, you have the CD to provide them with. Marty's last air trip was about 9 months b4 he died. He had tumors in the chest wall (ribs), diaphragm, pleural space and lungs .... he used oxygen at home, and we had an oxygen concentrator shipped to friends we would be staying with, but he did not require ox on the plane. I would say to ask your dad's doc what he thinks abt your dad's desire to travel by air.

Mary gave you a lot of good questions and points to ponder regarding if your dad's condition should deteriorate wherever it is he wishes to travel to !!!! So sorry you are going thru all this! Hugs 2 U.... and yer Dad 2....

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Lois, Poolboy's mermaid
Marty was stage 3/4 - pleural meso 3/9/07
fought valiantly 27 months
gone to Heaven June 16, 2009

Thanks for that, he was told he had approx couple months to live just before xmas, he is now at stage of not eating much at all and throwing up, his pain is slowly getting worse and he can walk about 10 steps before sitting down and then falls asleep as soon as sits, he is losing weight. Today he said good bye to my sister who went back to the uk and was hard as thats probably the last time he will see her and feel he may go downhill quicker now. I dont think him flying to uk from nz is such a good idea in his frail state.

Lynn
There are quite a few regulations for oxygen on airplanes. As weak as your dad sounds it doesn't seem a good idea to fly even a much shorter distance. Speak the time he is able to remain alert enjoying each other's company and staying close. My heart goes out to him and to you in dealing with this disease.

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HUGS
bonnie
Peritoneal survivor 10 YEARS

lynnwilding:

Thanks for that, he was told he had approx couple months to live just before xmas, he is now at stage of not eating much at all and throwing up, his pain is slowly getting worse and he can walk about 10 steps before sitting down and then falls asleep as soon as sits, he is losing weight. Today he said good bye to my sister who went back to the uk and was hard as thats probably the last time he will see her and feel he may go downhill quicker now. I dont think him flying to uk from nz is such a good idea in his frail state.

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Lois, Poolboy's mermaid
Marty was stage 3/4 - pleural meso 3/9/07
fought valiantly 27 months
gone to Heaven June 16, 2009