I am kinda thinking U R in a bodunk town or WHATEVER .... but if your dad is in a city where there is another ONC (oncologist) and if U have medical power of attorney, and IF AT ALL POSSIBLE ... well CRAP .... He is in VA Hosp, if I remember correctly.
Anyhow, INSIST on a PET SCAN for him to determine if there is INDEED mets to the brain.... Getting a PET SCAN is not treatment to prolong life ....! It would be a diagnostic study to determine if there is INDEED mets to the brain.....
If he has uncontrolled pain elsewhere, and just being on some pain meds could be a cause for his seemingly increased confusion/agitation/delusions...!
Marty was on Hospice and I suspected he had fluid surrounding his lungs .... and I requested a chest Xray one week, not complied with, kinda brushed me and Marty off as it was "sign of nearing end" .... well, one week later I INSISTED that Hospice do a chest Xray and they did.... Then the dumb butt radiologist dictated, possible pleural masses, possible pleural fluid or some other word for the "possible" ... prob SUSPECT .... anyhow, I told the nurse, Hell, I know he has pleural masses, I want to know if pleural fluid.... I WANT TO SEE THE XRAYS MYSELF.... When they did not give 'em to me, I called his ONC who was not a Hospice doc and we got Marty scheduled to go into hosp for an ultrasound to see if flud... SURE 'NUF .... The nurse who would do the thoracentesis (removal of fluid) said, "We're not even going to get it all out today! He will have to come back Monday [it was a Fri we were there for ultrasound/fluid removal] .... Marty had in excess of 4 liters of fluid drawn on those two days..... That's when we had the dumb A S S nurse fired from Marty's care and did stay with Hospice for abt 2 weeks, but I bought my own stethascope and IN ONE HECK OF A HURRY I learned to listen to his breath sounds myself....
We then got off that Hospice and I took care of him, having learned how to tell when he had increased fluid and need to get thoracentesis.
He prob would have had a collapsed lung, died a lot sooner if we had not had such a good ONC.... Hospice wanted to just give pills for fluid.... and our ONC said, No, thoracentesis would be used for PALLIATIVE care ... it certainly is NOT A CURE.
Diane, I went into detail abt this not only to let you know you've GOT RIGHTS TO DEMAND some med findings for your dad right now, and also in case smbo else is reading this who is either warrior or caretaker for pleural meso.
Keep fighting and STAND UP AND STAY STRONG...
Luv 2 all..................Lois
Lois, Poolboy's mermaid
Marty was stage 3/4 - pleural meso 3/9/07
fought valiantly 27 months
gone to Heaven June 16, 2009